Need help with B12/D3: I am male 67 dx 20months... - CLL Support

CLL Support
15,386 members24,758 posts

Need help with B12/D3

vinnet
vinnet

I am male 67 dx 20months ago stage0 W&W.

I had three monthly review yesterday with onco and GP. For past 3 weeks I had been feeling very low energy/ mild depression. Also my toe and fingers of both legs feel wet even though no moisture.

Onco only says that treatment not needed at present. He takes no other question.

My VitB12 is 447 and VitD3 is 42. GP says that these are in normal range. However, my Ayurveda says that because i am vegan and due to CLL, my QOL can be improve if i take strong dosages of VitB12 and D3 to have B12 at over 750 and D3 over 70. I am told that due to age, my body is not making B12 and i will need to take it life long.

Experts on this site can advise me on what must I do to ensure good QOL.

Vinnet

ps: If needed or if it helps, I can send lab test report.

8 Replies
oldestnewest
Cllcanada
CllcanadaTop Poster CURE Hero

This article discusses B12 in the Vegan diet

vegansociety.com/resources/...

~chris

vinnet
vinnet
in reply to Cllcanada

Thx Chris. The article confuse me more..

The vegan B12 supplement capsule is 1500mcg and advise is to take one capsule daily with breakfast...

Article says 2000mcg , once per week..

Article does not specify upper limits but suggests that one shud avoid getting into high levels.

Do we have a simple to follow diet plan for cll which i can use?

vinnet

Cllcanada
CllcanadaTop Poster CURE Hero
in reply to vinnet

You need to discuss supplementation with your GP, since there are a number of factors involved in B12 absorption..., like the dose of the pills, and if you have much 'intrinsic factor'

I use monthly shots, it gets around one problem...

vinnet
vinnet
in reply to Cllcanada

Hello

Even after one month of my above post, I have not found any solution to my low energy and more importantly, depression.

GP and Onco dismiss it by saying that i am making the problem and if I insist, they can write an anti depressant!!!.

I really need advise from you or other experts on this forum on what i must do to become normal. As i mentioned earlier, I was perfectly well 18 months ago, and i went for vacation in Australia and thoroughly enjoyed. I cannot imagine to do anything even remotely similar.

vinnet

AussieNeil
AussieNeilAdministrator
in reply to vinnet

Sometimes we temporarily need the assistance of an antidepressant. If you want to try something else first, a counsellor may be able help and even exercise may help in mild situations. I hope these suggestions help.

Neil

vinnet
vinnet
in reply to AussieNeil

Neil

So, I assume that my depression symptoms are not due to chemicals created by CLL but are due to my own thinking, and that is why a councillor might help. I anyway do Yoga and breathing every days for more than 10 years.

I will see a councillor and see if it helps.

Rgds

vinnet

AussieNeil
AussieNeilAdministrator
in reply to vinnet

If you have exhausted other likely possibilities, then yes, your depression is likely due to how your thinking has been affected by your CLL diagnosis. It's a big adjustment to make to living with the uncertainty of an incurable, chronic illness. You are far from alone in needing help to make that adjustment.

Please let us all know how you get on with a counsellor. Keep in mind that it could take a number of sessions before you notice an improvement in your thinking and you may still need the temporary assistance of an antidepressant to help you make that transition.

Neil

vinnet
vinnet
in reply to AussieNeil

Thanks Neil. I will update the group on results with a councillor.

regards

vinnet

You may also like...