Cytoxin Storm prevention?: I'm a lymphoma... - CLL Support

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Cytoxin Storm prevention?

sunsetssr profile image
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I'm a lymphoma survivor, and I get horrible rashes all over my body(mostly on delicate areas like knees, elbows, face, and neck) periodically. I'm wondering if this can be prevented by anything possible. I'm on active treatment now, but these skin rashes occurred when I was Watchful Wait too. I know about the cause due to lymphoma, application of Lidocaine, Benadryl cream, cortisone cream and even taking Benadryl tablets but I'm really concerned or frightened if it happens outside the house. I normally undress, start the above-mentioned remedies, and keep myself cool under the fan till it passes which is normally 2-3 hrs. I appreciate any feedback because my Haemotologis recommended none at the present time. Thanks

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sunsetssr
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JigFettler profile image
JigFettlerVolunteer

Cytoxin Storm prevention? I am not sure what you mean by this?

However...

Sounds like a diagnosis of the rash is required. For the correct treatment a correct diagnosis is essential.

Your rash sounds episodic. A record of its behaviour and photos with a trip to yr family Dr would be a good plan. Maybe even a Dermatologist.

Rashes can be tricky to diagnose. I don't blame a Haematologist for dodging that!

Jig

skipro profile image
skipro

Sorry to hear about your rash!

I have one for 9 months after rituximab

I tried all the things you are but Aveno oatmeal lotion worked best for me

God bless and good luck

Skipro

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