Getting my Calquence prescription in ice storm - CLL Support

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Getting my Calquence prescription in ice storm

CoCoLuna11 profile image
12 Replies

Not sure what to do about this… I have 4 days of Calquence left. Oregon is dealing with some bad weather and my doctor’s office is having trouble with both phone and online services. The pharmacy I use is online and I refill my medication through texts. It was supposed be delivered today but I called and found out they didn’t get the message to renew so the earliest it will be delivered is on the 18th (3 days) assuming weather doesn’t prohibit delivery). That’s cutting it really close. I’m going to keep trying to get through to my hematologist but wondering if I should cut back to 1 pill a day? Ugh!

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CoCoLuna11
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12 Replies
Panz profile image
Panz

This has happened to me and I did cut back to one pill a day. And I was without any for two days and I had no negetive effects….but very frayed nerves! Hang in there!

Panz

🙏🤞🙂👍👌❤️

CoCoLuna11 profile image
CoCoLuna11 in reply to Panz

Thank you so much. That’s good to know. The process has been so seamless in the past. Now know to never get down that low.

LeoPa profile image
LeoPa in reply to Panz

Looks like it is perhaps a good idea to save a pill here and there for emergency situations like this? Like skipping a pill from time to time.

Katie-LMHC-Artist profile image
Katie-LMHC-Artist

I had to go off Calquence for 7 days for a surgery. I was fine. Hope this helps your nerves and you get your medication soon! 🦋

CaptRon1976 profile image
CaptRon1976

as LeoPa commented, if you have been on Calquence for >1 year it would likely be safe to skip a day or two if necessary.

Alternately, you could take 1 a day for 1-2 days thereby getting an extra two days of reduced dose ( but some) Calquence every day.

Deach profile image
Deach

also recommended to go off Calquence 4 days before colonoscopy and a couple days after, my oncologist said it shouldn't affect my numbers whatsoever. What a relief to know!

BgChiLL profile image
BgChiLL

I am in Oregon, too, and the weather is suppose to reach 50 degrees on Wednesday and melt all this. But, meanwhile, even the Willamette Valley Cancer Institute is closed today (Tuesday.)

CoCoLuna11 profile image
CoCoLuna11

Right, haven’t been able to get through to them. Left a message with their answering service. I think the warming temps are going to get things back on track tomorrow so hopefully my medicine will get delivered without any gaps.

CoCoLuna11 profile image
CoCoLuna11

Thanks for the insight everyone!

craterlake profile image
craterlake

Hi CoCoLuna11 , i have 1 1/2 bottles of calquence sitting on my counter with the rest of my vitamins . i am on venetoclax so i will never use them ..let me know if i can help ... i am in southern oregon .. no ice or snow here .. hope you are doing well blessings , james

CoCoLuna11 profile image
CoCoLuna11 in reply to craterlake

That’s very kind of you. Thank you

craterlake profile image
craterlake in reply to CoCoLuna11

😊

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