Age and Calquence

[Mamagriz]

Is anyone in their 80s and taking Calquence?

[Shepherd777]

My wife is 75 and has been on it for over a year.

[olyocl]

I have been on it for 3 years and will be 83 next month.

[Mamagriz in reply to olyocl]

Are you active/independent?

[olyocl in reply to Mamagriz]

I am definitely independent not just as active as I would like to be, but am on waiting list at hospital for spinal stenosis surgery. After I recover from this I hope to resume lots of holidays again. I usually travel on my own.

[Haileybury]

Yes. I’m 84 and been on Acalabrutinib for over a year.

[Mamagriz in reply to Haileybury]

Are you active/independent?

[croakerUK]

I started it 11months ago at age 84, now 85 and my bloods within normal range, no bad side sffects to date. No other major health issues.

[Mamagriz in reply to croakerUK]

Are you active/independent?

[croakerUK in reply to Mamagriz]

Yes. I walk regularily.One day a week I volunteer in a local charity warehouse which requires me to be on my feet for over 5 hours, and there is also heavy lifting as furniture and white goods are donated. Blood pressure is fine, as are all my latest blood tests. I live alone and do everything for myself. Hope that helps.

[Mamagriz in reply to croakerUK]

Yes, thank you. My Dad is 86 and needs help with everything.

[Nucleusman]

Yes am 82 been on Calquence since last October. Wonderful am presently in remission with bloods normal. Only sides effects body bruises here and there and nose bleeds

[Mamagriz in reply to Nucleusman]

Are you active/independent?

[Unglorious in reply to Nucleusman]

Hi, I noticed in your post that you experience nose bleeds. I do have nose bleeds, especially in one nostril, the right nostril. sometimes 2 days in a row but not severe. stops in about a minute. Do you do anything special to curb the nose bleeds? I try and use Vaseline twice daily, applied with a Q-tip. Would appreciate feed back. Thank you.

[Nucleusman in reply to Unglorious]

nothing special just put a tissue in to stop bleeding. they get less and less although my haematologist has reduced my dose to one Calquence a day a I am already on two blood thinners. Seems to have stopped bruising- I hope

[Unglorious in reply to Nucleusman]

Thank you for your reply. Yes, I put a tissue in as well. Hope you continue to do well on your lesser dose.

[cll2013]

I am 80 and have taken Calquence for 2 years. It is working very well.

[Lalitpur]

I'm 82 and have taken it for 5 months with very positive results

[CLL-CKDman80]

I have taken it for 2.5 years and I am 80. It has stabilized my CLL with no current side effects.

[Mamagriz in reply to CLL-CKDman80]

Are you active and/or independent?

[CLL-CKDman80 in reply to Mamagriz]

I am active (work out 3 - 5 times per week, play golf 2 or 3 times per week, mow lawns, vacuum, etc.) and I am independent (don't need any assistance in taking care of myself or our home). I lead a pretty active and normal life and most of the people I know with CLL (some on watch&wait, others in active treatment (mostly acalabrutinib and zanabrutinib) lead similar lives. Some have other conditions which limit their activity and independence but as far as the people I know without other conditions (heart, diabetes, other cancers, etc.) they lead quite normal lives.

[MisfitK]

I'm wondering why you are asking posters if they are active/independent. The med will normally work whether or not one falls into those categories. And once it works, there will normally be an improvement in the patient's overall health, sometimes markedly so, since it's not usually prescribed until it becomes truly necessary in the disease course.

[Mamagriz in reply to MisfitK]

I have to assist my Dad with walking, bathing, toilet, etc. He currently has a catheter, afib, COPD, and is not motivated to exercise, bath, etc, so I'm just wondering if this will improve any quality of life because he already has brusiing, fatigue, weakness, hypotension and afib.

[CLL-CKDman80]

The only symptoms I have are hot flashes (very similar to my wife's menopausal hot flashes - but not drenching sweats) and very easy bruising.