First of all thank you to all of you at HU. I was only diagnosed 12 weeks ago, am on W and W and 6 monthly blood tests. I had never even heard of CLL so this informative and supportive forum is a Godsend to me as I try to learn about this disease.
We are booked to go on a cruise of the West Indies next January, the deposit paid before we had any idea of my CLL! My concern is that I am likely to need vaccinations and have learned that of course with CLL, we are immunocompromised and can't have live vaccines. I have been " googling " to find out which vaccines are live. Please does anyone have any advice for me ? My other concern is the Zika virus as there is a trip to the Rain Forest, though I could easily sit that one out. The deposit was expensive and we are looking forward to this holiday, we would be sorry to have to cancel.
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Saska-Jul31
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I noticed just recently they trimmed it a bit and entries on the site also point to here: travelhealthpro.org.uk/coun...
What I do is print out the relevant pages and then book an appointment to see the nurse at my GP practice. That normally ends up as two visits with her doing a bit of research in between.
There is no vaccine for Zika, but I would be more concerned about Norovirus, which is seen on cruise ships on occasion. The yellow fever virus is live and some areas require vaccination to enter a region, as is the dengue vaccine, but that wouldn't likely be required.
The CDC in the U.S. has a section on this and we fall generally in the same category as an HIV patient, however post treatment for perhaps a year we are in the severely immunocompromised category, when CD4 T cell are suppressed...
You sounds like you are very early stages, so go and enjoy the holiday!
Ask you GP (and/or haematologist re vaccines, but as said above, live vaccines are a 'no'
Ask you haematologist at next visit on any precautions you should take - if they are like mine, they will want you to live life to the full and be supportive!
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