One Year Anniversary on Acalabrutinib (Calquence)

[MorganNL]

I have reached my one year anniversary being on Acalabrutinib!…..how quickly that year has gone 😅. I’m so happy to report that my most recent bloodwork taken a few weeks ago showed that all of my hematology and chemistry counts were within normal limits…..first time in many years!! 👏👏. And I am feeling wonderful, very few side effects and more energy. I’m even enjoying shovelling all the snow we’ve received lately 🤣. I am enjoying every single day of feeling well 👍. Looking forward to summer, though……can’t stand the cold! 🥶

Best wishes to you all!!

[Jackpot]

I love reading posts like this one Morgan. Thanks for the update. Glad you are feeling great - you must be if you can shovel snow!

Cindy

[Bill1288]

Great news. I am glad Acalabrutinib is working for you. I have been on for over 3 years and it is still working. Hope it does even better for you

Bill

[kitchengardener2]

I am into my second year with my friend Acalabrutinib, my results are much the same as yours and I feel delighted. Long may it continue, God bless x

[Eucalyptus22]

Been on Acalabrutinib just over 2 years. I had a scan just before Xmas and all lymph nodes are clear and spleen normal size.

Great drug, let's just hope it continues to give us quality of life.

Onwards and upwards.

[Mina2021]

That is great news Morgan! Long may it continue and feeling wonderful 😊

[MisfitK]

That is wonderful news!!

[noeagaman]

That's great news! I hope that this continues for you for a long time!

I love that picture! It reminds me of the boat kit that I purchased and will soon start building. Where is that located at?

Chris

[MorganNL in reply to noeagaman]

This is a pond in Newfoundland. I was visiting my cousin for the weekend, woke early and went down to sit by the pond for for the sunrise….a combination of changing sun, clouds and fog gave me 2 hours of just magical beauty💞👍

[noeagaman in reply to MorganNL]

That sounds like a nice relaxing experience, even with the cold of winter... I'm glad that you were able to enjoy some relaxing time.

[Jabramo]

I'm at the point where my Dr. wants me to start therapy because of having severe spleen enlargement and some lymph nodes. My white count isn't that high but my platelets are below a hundred. How did the drug affect you immediately? Did you have any of the associated side effects? If so, how long did they last?

[MorganNL in reply to Jabramo]

Hi Jabramo, are you starting Acalabrutinib, or were you referring to the original IV chemo I had in 2018? I’ve had very few side effects with the Acalabrutinib……had slight evening headaches for a week or two when I first started but not after that. Everyone recommended drinking coffee and that really did help. As well, I have petechial type rashes on my chest and arms from time to time, and constipation…..nothing that bothers me too much at all.

If you were referring to my first treatments of IV Bendamustine and Rituximab just go to my page, as I noted all of my side effects in my 2018 posts💞. Good luck….you most likely will find that treatment will not be as bad as you might imagine🙏🏻. And the benefits were great!

[Flitzebogen]

Congrats! Looks like we started Acal around the same time (I was March of 2022). I am also at normal levels now. Long may this last for all of us!!