CLL relapse

[Taupe7]

Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years after treatment. Now she has one enlarged lymphnode in her armpit, her hematologist said that CLL is slowly coming back.

Leukocites 7.7

Lymphocites 52%

Everything else in her lab results and ultrasound is fine.

My question is - how long does it take for CLL to "come back fully", and are the conditions to start treatment again the same as the first time?

In my country now is available Imbruvica (from recently), and the hematologist said probably her next treatment will be with Imbruvica.

[AussieNeil Administrator]

Hi Taupe,

How long it takes CLL to come back is different for everyone. The conditions for subsequent treatments are the same as the first time, as covered in this post: healthunlocked.com/cllsuppo...

Good to hear ibrutinib is available in your country.

Neil

[Taupe7 in reply to AussieNeil]

Thank you, AussieNeil.

[Leukemia-me]

I have been on Imbruvica for two years. It’s been working great. My lymph nodes have shrunk to nothing. It might affect your sleep. It has made my finger nails brittle and they crack and split but it’s much better than problems it fixed.

[Taupe7 in reply to Leukemia-me]

Thank you, Leukemia-me, everyone's experience is precious.