After overcoming the Ricther Transformation and removing the port last week, fear returns and many questions. Will it come again? Why was it transformed? Why is this transformation so little known? etcetera etcetera.
Doctors have little information, only statistics that are from many years ago and do not correspond to current statistics and new treatments that are effective.
Every time someone enters our Ricther Transformation group, they are terrified because the first thing they do is look online and feel that life is getting out of hand, but it does not correspond to reality.
With this I want to recommend to everyone not to look online, because the data is out of date and not current. Each time it is treated better, it is difficult but it is tried and overcome.
Very good advice, avoid Dr google and get on with things. You look fantastic and having read your profile I can't imagine how I would deal with what you have. I'm sure there's a little anxiety over the future but we all should live our lives as best we can, and with hope or luck, fate if you believe in it, we can have many years of good living ahead of us.
Everything I got to see online about Ricther's Transformation was over 10 years old. I remember that the day they told me I said goodbye to my entire family and hardly had contact with anyone. It was terrifying
Very wise words, Toni! Managing the fear is so much better than feeding into it, which is what often happens when we read information on the internet that is misleading or not really applicable.
You look fabulous and are such an inspiration. Thank you so much for all you do - you are such a valuable resource and a comforting one, too.
right now I am on a relapse of the CLL and it is shooting at me. I don't know what I'm going to find in a few months. At the speed that my lymphocytes go, going up 5000 per week, I see myself in treatment at Christmas.
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