The good and the not so....

[Downriver555]

Just checking in to give my friends an update. I had results come back from my flow cytometry yesterday. Happy to say I am MRD negative and no cll cells detected.

My Igg numbers dropped from 900 somethjng to 565. My IgM is 14 and IgA is 17. Not what I was hoping to see but super happy about my cll status. I talk with my dr tomorrow to see where to go from here. For those just reading I finished my treatment of Gazyva and Veneteclax in May.

Keep the hope , Susan

[PlanetaryKim]

Great news about the u-MRD! Congrats!

[Newdawn Administrator]

Excellent news and your immunoglobulins are not low enough to warrant IVIG (in the UK anyway). It’s a brilliant outcome. Celebrate! 😃

Newdawn

[Downriver555 in reply to Newdawn]

The lowest they were was 215 when I started Igg replacement over a year ago. I put the transfusions on hold when it hit 925. Now I think that was a bad idea. Now they have to get worse before I can restart and I know it is just a matter of time. Not a good idea to play around with Igg numbers especially right now. I talk to my doc today and hopefully I can convince him to restart igg

[Newdawn Administrator in reply to Downriver555]

Good luck with the IVIG request Susan. You’ll see the present difficulties from this post I put on today;

healthunlocked.com/cllsuppo...

Newdawn

[Naka]

Congratulations on the MRD

[Ghounds]

I'm so pleased for you.

[annmcgowan]

Well done, great news.

Ann

[LovelyLilyGirl]

Congratulations on MRD negative. 🎊🎉🍾

[Sushibruno]

Awesome Susan👍😊.

[Smac29]

Awesome news! Congratulations! 🎉🎉

[Zoy2004]

Congrats 👏

[Fran57]

Brilliant news!

Fran 😉

[haposwald]

Susan so happy and grateful cheers and here’s to hoping it’s gone for good! God bless

[bayside64]

Great news about MRD.

[studebaker]

Congratulations Susan. Great successful results.

Dana

[Panz]

This is super good news! Way to go!

Panz🙏☘️💕

[bennevisplace]

Well done you, and your two friends Gaz and Ben.

[bennevisplace]

Auto correction just ruined my last line. Grrrr!

[Sepsur in reply to bennevisplace]

I know that one well 🤣

[Sepsur]

Congrats 😊