Just checking in to give my friends an update. I had results come back from my flow cytometry yesterday. Happy to say I am MRD negative and no cll cells detected.
My Igg numbers dropped from 900 somethjng to 565. My IgM is 14 and IgA is 17. Not what I was hoping to see but super happy about my cll status. I talk with my dr tomorrow to see where to go from here. For those just reading I finished my treatment of Gazyva and Veneteclax in May.
Keep the hope , Susan
Great news about the u-MRD! Congrats!
Excellent news and your immunoglobulins are not low enough to warrant IVIG (in the UK anyway). It’s a brilliant outcome. Celebrate! 😃
Newdawn
The lowest they were was 215 when I started Igg replacement over a year ago. I put the transfusions on hold when it hit 925. Now I think that was a bad idea. Now they have to get worse before I can restart and I know it is just a matter of time. Not a good idea to play around with Igg numbers especially right now. I talk to my doc today and hopefully I can convince him to restart igg
Good luck with the IVIG request Susan. You’ll see the present difficulties from this post I put on today;
healthunlocked.com/cllsuppo...
Newdawn
Congratulations on the MRD
I'm so pleased for you.
Congratulations on MRD negative. 🎊🎉🍾
Awesome Susan👍😊.
Awesome news! Congratulations! 🎉🎉
Congrats 👏
Susan so happy and grateful cheers and here’s to hoping it’s gone for good! God bless
Great news about MRD.
Well done you, and your two friends Gaz and Ben.
Auto correction just ruined my last line. Grrrr!
I know that one well 🤣
Congrats 😊
Looking for an integrative medicine oncologist in the U.S.
SpecialstsYABTKi or Yet Another BTK inhibitor - the A to Z list of Bruton's Tyrosine Kinase Inhibitors for CLL following Ibrutinib's success
CT scan Boney lesions, I have just had a CT scan and boney lesions have been detected on my pelvis and lower spine, is this CLL related. 
Exercise for aging people: where to begin, and how to minimize risk while maximizing potential, by Peter Attia M.D. 
