I made a Facebook group about the Ricther Transformation. The idea is that only patients with this serious complication and hematologists enter. At the moment we are 10 people in two hours that makes it open. The idea is to be able to exchange treatments between patients and doctors.
The group is called Richter’s Transformation. Search it on Facebook.
There is a patient who has been with Ricther for 12 years and is still alive. If you can't find it, contact me and I'll pass you the link.
That's what it's all about, being in communication all the Ricthers together. People who have Ricther feel like they are stinking. It is very difficult to find a Ricther and you feel very alone.
I think it was necessary. We are few and doctors can not make statistics because they do not have many cases. I hope that in this way I can obtain information and in that way do studies. It is important at what time the transformation occurred. I am convinced that if it is detected in the beginning it can be cured.
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