Imbruvica and chemo : Has anyone had a secondary... - CLL Support

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Imbruvica and chemo

migirlusa profile image
8 Replies

Has anyone had a secondary cancer while on Imbruvica? My oncologist is coordinating with Dr. Choi at UCSD. I have to start chemo for breast cancer 2nd week of January. I just had my port put in yesterday. This is going to be a real rollercoaster 🎢. Not sure if I’ll have to go off Imbruvica for the 3 months of chemo.

I hope everyone had a wonderful holiday.

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migirlusa
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8 Replies
SheySheySwimmer profile image
SheySheySwimmer

Sending best thoughts to you.

Jm954 profile image
Jm954Administrator

I can't help with your question but wanted to send you my best wishes for a smooth journey through your breast cancer treatment.

Take care and let us know how you are

Jackie

migirlusa profile image
migirlusa

I hope you’re feeling strong Scott. Have a wonderful new year.

Keep us updated on your results. You’re in good hands. Prayers for a great 2020 and amazing results.

astefanovich profile image
astefanovich

5 Years on Imbruvica and I have had a half dozen skin cancer lessions removed including Mose Surgery.

db601 profile image
db601

cllsociety.org/2019/12/asco...

db601 profile image
db601

Hi Pam,

Yes, I just had a RCC Renal Cell Carcinoma 2 cm.

Chromophobe (less than 5 % are Chromophobe)

- removed from my kidney cortex In the adipose tissue. . Minimal symptoms - frequent voiding. No treatment needed. Wide margins clean.

Found by accident. (I had an aspiration pneumonia from reflux).

Perceptive *Urgent Care* Doctor scripted a CT abdominal - suspecting diverticulitis.

If an UltraSound was done first - it would not have been discovered.

Link in reply above to Dr Koffman’s list of the top 10 takeaways for CLL for 2019.

The paper (OSU) on *SPR Secondary Primary Neoplasms* related to the BTKi like Ibrutinib was presented at ASCO in June 2019.

It is - I suspect - becoming TMI - too much information for our caretakers, researchers and patients.

Stay vigilant, be your own advocate and if necessary- *the patient from hell*.

* I had symptoms. Frequent voiding.

*My hsCRP was rising - 16 at last measure. ***

*This paper from ASCO on SPN was available since June 2019.

*This is my 4th time at the rodeo.

*We need to be scanned more frequently.

*Early detection is our only defense.

***inflammation, obesity, RCC , recent paper from MSK. I’ll find and post.

Good luck!

~ Diana

db601 profile image
db601

mskcc.org/blog/obesity-para...

May have been a separate factor in my SPN.

But just maybe ...

The hsCRP increase may have been alerting me the inflammation was building up in the adipose tissue to cope with the tumor.

So much unknown.

Stay vigilant.

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