iWCLL Guidelines for the diagnosis, management... - CLL Support

CLL Support

22,957 members39,425 posts

iWCLL Guidelines for the diagnosis, management and treatment of CLL - a brief history and the changes in last year's long awaited update

AussieNeil profile image
AussieNeilPartnerAdministrator
3 Replies

I quite often refer to the above guidelines when questions arise about treatment, but it is well worth becoming acquainted with the whole document, because it encapsulates international expertise in the best practices for diagnosing and looking after those with CLL. If your specialist recommends something not mentioned in this document to manage your CLL, then I would recommend you first asking why and if not satisfied with the answer, seeking a second opinion. I would suggest that there would need to be good reasons, based on recent clinical trial findings or plenty of personal experience with CLL patients, before accepting a significant departure from the joint recommendations from some of the world's best minds on CLL. Those might well relate to possibly starting treatment earlier on the novel non-chemotherapy drugs, because there was the expectation that this option might appear in the 2018 version.

ashpublications.org/blood/a...

Professor Susan O'Brien, of Irvine, the University of California, provided an overview of the history of this document and the changes incorporated in the version released in 2018 here: hematologyandoncology.net/s...

Neil

This is an unlocked post, so it can be found via an Internet Search

Photo: Bee approaching grevillea flower

Written by
AussieNeil profile image
AussieNeil
Partner
To view profiles and participate in discussions please or .
Read more about...
3 Replies
JigFettler profile image
JigFettlerVolunteer

Neil! In a word... well 2 actually...

Thank you!

I really appreciate your huge efforts in posting so much valuable and high quality information and support on the Forum for us all, and the tenacious Googlers for the unlocked posts!

This Forum is fast becoming a treasure trove of "pearls of wisdom" and guidance for all on the CLL journey.

Its comforting!

Jig

Jm954 profile image
Jm954Administrator

Excellent!

ABP45UK profile image
ABP45UK

Thank you for this important post and highly informative links.

Can it be pinned for eternity or rather if not eternity til the next update? Many members will want the information provided here.

Thank you again.

Not what you're looking for?

You may also like...

Finding Mental Health Therapists ASAP?

A friend of mine was just diagnosed with cancer (not CLL) and she doesn't already have a therapist....

When will I need treatment? Is Watch and Wait still the best option with newer treatments?

Recent updates 2023: https://www.patientpower.info/cll-answers-now-should-i-still-watch-and-wait...

Over reactive 1st Obin Treatment.

First dose of 100 mcg July 8th and 900 mcg July 9th. After treatment never came back to feeling...

Newly diagnosed with Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma - CLL/SLL or just found us? This post is for you!

Welcome to the CLL Support community on HealthUnlocked, a very active community with 23,000...

I was diagnosed with Squamous Cell Carcinoma on my chin today.

Presumably this is a secondary tumor from my CLL. The problem that I am experiencing is that the...