Experience with Clinical Trial: I am about... - CLL Support

CLL Support

23,088 members39,650 posts

Experience with Clinical Trial

Elam profile image
Elam
1 Reply

I am about 2 months into a trial starting with debulking with bitimustin and immunotherapy, followed eventually by Venetoclax for about a year. I had several internal lymph nodes that were quite enlarged. I had a CT scan a few days ago and the good news is the scan showed no more enlarged nodes. However my blood work showed my Neut# only at 0.3. I expected a higher number since I did the last infusion about 3 weeks ago. The next stage of my treatment (immunotherapy along with the orals) has been delayed a week to give my Neut# time to recover. They will consider Nulasca depending on my blood work next week. Have others had similar experiences?

Written by
Elam profile image
Elam
To view profiles and participate in discussions please or .
Read more about...
1 Reply
AussieNeil profile image
AussieNeilPartnerAdministrator

It's reasonably common for a cycle to be delayed and/or G-CSF injections such as neulasta, neupogen, filgrastim,/zarzio administered when undergoing BR or FCR. Sometimes the full chemoimmunotherapy course can't be completed. In your case, you should still expericence considerable debulking from just a few cycles of BR. Does the trial information you've received cover this eventuality?

Neil

Not what you're looking for?

You may also like...

Newly diagnosed with CLL

Hi everyone, this is my first post!I am a healthy 57 year old woman and have recently been...

CLL with Abdominal discomfort.

I’ve had abdo discomfort for nearly 2 months now. Diagnosed with CLL 2008. No treatment. WCC around...

CLL13 Clinical Trial

Hi, can anyone advise me about the above trial? I have been asked to take part in this trial but...

CLL FLAIR trial

Hi everyone I was diagnosed 3 1/2 years ago and have been W&W since then. My consultant has now...

Recently diagnosed with CLL

I am a 56 year old Male who was diagnosed with having CLL in May 2016. I am also a diabetic (type...