I had my Second option regarding MySll diagnosis at Sloan with Dr Mato.
1. Sloan was a great hospital regarding staff.
2. Once I registered, I was immediately taken in for blood work the first 5 min I was there. I was then taken for vital signs
3. I waited maybe 30 min then had the Dreaded bone marrow biopsy... the worst part of the biopsy was the numbing , the injections burned. Now as for the actual biopsy it wasn’t bad at all like others have said on a scale from 1 to 10 it was a 1 or 2.
4. My Dr said yes I have SLL but no treatment is needed. I asked when did he think and understandably he couldn’t give me an exact answer. But he did say it could be a decade decades or you may never need treatment. He did say one thing was to my disadvantage was my age. I asked why , he said if you were 90 we wouldn’t be concerned with close monitoring. But your 46 and it’s in your lymph nodes so we have to monitor by imagining not so much blood because it’s not in your blood. He wants to check on me every 6 months to see how things are going.
5. He did a Fish test and mutation test as well. He also clipped my fingernails to test the cells to compare them with my lymph node and marrow cells to see the cell differences , why I have no idea I guess it a new thing.
In closing he said go out and enjoy your life , he didn’t think this Sll will impact my life . I’m very happy with my meeting today and recommend Sloan to anyone that’s looking for a second or third opinion. Thanks John 😅
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Ironj
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Dr. Mato's former patients where upset when they heard he was moving. I'm sure you will be very happy with him. If you find out more about the clipped fingernails please post about it. I've never heard of that, but it seems like there is something new all of the time with CLL these days - good for us.
Thanks for the update John. Very happy to hear that you had a good experience and that Dr. Mato offered you reassurance. Wishing you all the best! By the way, that soreness you are probably feeling at your biopsy site should resolve over the next few days.
Thanks for sharing your good news. I have kept you in my prayers and am so happy to hear your results. Now, go follow your doctors orders and enjoy your life.
Thank you for the prayers .. I am very happy with the confirmation from Dr Mato and he basically said the same things my local oncologist said. So I have 2 very good Dr’s watching. Thanks John
Friend of mine goes to Sloan in NY for her SLL. When I lived in NJ, used to hear wonderful things about it. I had BMB 11 years ago... I was so nervous and it ended up to be 1 for me. Pleasant surprise. I go for BMB in May. Was thrilled to hear my doc said I will be sedated. I wasn't sure I would have the same easy time of it.
Never heard about the nail thing either! Let us know what that was all about.
Spend time doing fun things! You are in good hands!
Good luck with you BMB in May , I will update on the nail thing once I have the information on it. I agree I’m going to focus my time on positive thoughts and make the best of everyday. Thank you John
I’ve heard of him as soon as I was told I had Sll. My brother is in the medical field and when I told him the news .. he immediately told me to call and make the second with Dr Mato. It has been done and I agree he’s very proactive in the sense of ordering a ton of test , names I’ve never heard of and new ones 2 he told me of one it testing your finger nails and the other new one I can’t remember and one the was started at Sloan, All genetic test. He indicated that most of the information he is looking for will come from the BMB. Thanks john
Great news! I was also just recently diagnosed in October with CLL. It was discovered through a routine mammogram and there were enlarged lymph nodes in my armpit. I’ve been seen by a terrific Dr. at John’s Hopkins in Baltimore. Dr. Nina Wagner-Johnston. Lymphoma and Non Hodgkin is her specialty. I am also not having to undergo treatment at this time. Just in a wait and see mode. I will be going back every 3 months for tests. I am 65 and in great health otherwise. I got a blood test and CT scan to start. 23,000 white cell count and some small lymph nodes, but that is all. I was told this is for so many just a chronic condition. It was a welcome relief to learn this.
I was between Dr. Mato or Dr. Richard Furman. Even got an appointment with Dr. Mato for December but my hematologist got me an appointment much sooner with Dr. Furman. Went from “No! You don’t have CLL” to “yes you do, but you are going to be ok!” in a matter of days. Such a roller coaster. I’m really happy you met with Mato!
Dr Furman is just as good a Mato I’m told. I must say I would prefer DR Fuman because he’s not big on scams. Dr Mato is big on scams. I’m looking to maybe call Furman because of that reason.
I think you made a great choice.
Don’t get me wrong Mato is world class it’s just the scan thing I don’t care for.
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