Imbruvica

[oso7672]

Hi there. This is Rosa. I've been on Imbruvica now for 4 weeks and to my surprise have had minor side effects. So, I have questions.

1. I get blisters in my mouth that start about an hour after I take the pill. I rinse and manage them very well. When do you think this will go away.

2. I am starting to get aches in my hands, wrist and ankles. I'm not taking anything for them except eating Cherry's that seem to help a little but not much. When do you think this will go away.

3. I noticed yesterday that some of my hair is falling out. Not a lot. Just a few at a time. Will this go away in time.

Thank you all for your support

[josephinef]

Hi Rosa, all that you’re experiencing has happened to me also. I can tell you this will subside in time especially with the hair.

Regarding the mouth blisters I use a mouthwash called cepacol which I purchase at the pharmacy in Australia. I use it everyday. Works great for me.

With the aches and pains I persevere with them at present.

I wish you all the very best with your treatment.

Take care and look after yourself.

Kind regards Josephine 😊🌹

[Ginajetta]

Hi Rosa I started imbruvica last September and had all the things you mentioned. They eased with time. The joint pain much less and roved around and new w most times non existent. At this s time though I am now dealing with hip joint which I bruised. You will feel better and better. Wishing you the best.

[Lulu8581]

I had all those side effects, plus very dry skin (my face wrinkled like a 90 year old's) but within three months all my symptoms disappeared except for occassional joint pain. And that can be managed by a few tylenol...These small inconveniences are well worth it when you see your WBC lower and your energy return! Hang in there!

[BeckyLUSA]

Had all the same side effects. Hair stopped falling out about 6 months in. Mouth sores went away and came back about 3 months later, but have not returned in the last 12 months. Aches and pains are fleeting and come and go.

Good luck

BeckyL USA

[oso7672 in reply to BeckyLUSA]

Thank you Becky. Did ALL of your hair fall out or just a little bit? Did you go bald or just thinned out.

[BeckyLUSA in reply to oso7672]

Just thinned out. But when it came back in it was curly!!!