Thank you

[Sotired50]

After reading a post from Emma I finally do not feel completely alone. My struggle with night sweating and intense daytime heat with extreme sweating have me isolated and even the best of my doctors tend to brush these symptoms off. I am only 49 diagnosed at 45 and actively in menopause until my hysterectomy last year. The sweating and heat went from head, neck and chest to my entire body with episodes lasting from 5- almost 45 minutes multiple times an hour. Especially terrible are the ones that come just after waking. It runs my life not me. Medication for excessive sweating has helped a little but I am desperate to find the actual cause. If they check my thyroid one more time I'm going to scream!! Thanks for letting me vent and for finally feeling not so alone.

[Jm954 Administrator]

Hi Sotired50, I'm really sorry to hear you are suffering like this and I can understand how isolated you feel.

Just a thought but Vitamin D deficiency can cause sweating, especially head and neck. You can get tested by your PCP I think (I'm in UK).

I hope you find the answer soon.

Jackie

[GMa27]

Acupuncture helped me with hot flashes. I didn't get nite sweats and I am wondering if my acupuncture sessions helped with that. I also take phyto B 4L. When I stopped during chemo the flashes came back. Once I was in remission I started those drops and the flashes are gone. I have had them for 22 years. Some women never get rid of them. I happen to be one of them. Was hoping after 5 years they would disappear like most.

💖

[Ladylin151]

Your doctors brush you off because hot flashes and night sweats are extremely common for women your age. Hysterectomy usually makes it worse, not better and a great proportion of doctors believe that hot flashes associated with CLL have no fix. Your personal symptoms could be hormonal, sugar related, blood pressure, thyroid or CLL among others. If you are extremely uncomfortable please explain to your doc very precisely. It IS worth checking your blood sugar at the time of the symptoms (morning increases are very common) as it doesn't show up on the most common tests.