There must be many of us on this site that are fortunate enough not to have required treatment for our CLL yet. However, that does not mean we do not experience a range of symptoms.
Swollen Lymph Nodes
Night heat/ inability to regulate body temperature
Night extreme sweating
Frequent infections that take ages to heal
I’m sure there are more, for myself I’d add skin liable to spots, but I can’t be sure that’s not just me.
How do you cope?
For myself, I go to the gym 6 mornings a week, as I find that doing so lifts my energy levels and makes me feel more positive about myself. I like to monitor and keep up to date with this site, to try to educate myself, thanks to excellent information shared by those far more knowledgeable. Also like to read and share in posts, and others’ experiences on this site as CLL is not something I share with most people.. The rest of the time I ignore CLL, try to accept the limitations and live as positively as I can.
This question must have been raised previously, but I'd be interested in hearing how others are coping.