My husband has been treated here in north London by a team of haematologists/oncologists and last year participated in the Rialto Trial (Ofatumabub /bendamustin + - Idealisib ). He is now back on w & w with blood tests every 3 months after being told he is in partial remission. After reading all the posts on this site, I notice that many of you mention how important it is to consult and be treated by a doctor who specialises in cll. We are now wondering that when it is time for the next round of treatment to start, should we find a specialist in London/Home Counties , and if so, (1) would it be ethical to change doctors ?(2) where could we find that specialist ? (3) would we have more chance of getting access to the latest treatment than staying put ?
Hopefully, my husbands remission will last for years and not months, but because of his poor prognosis, we want to be well prepared and know that we've researched every avenue.
Thank you in advance for reading this and we would be so grateful for any advice that anyone can give.