Getting better: I have been too slow in sharing... - CLL Support

CLL Support

23,335 members40,040 posts

Getting better

bkoffman profile image
bkoffmanCLL CURE Hero
29 Replies

I have been too slow in sharing good news. Last week I learned that my bone marrow biopsy done 28 days after getting my CAR-T cells showed no copies of the DNA signature of my CLL- this is at least one log lower than the usual MRD testing by flow cytometry finding one cell in 100,000. More details on this and my recent celebrations on my blog cllsociety.org/car-t-blog/, plus from ASH 2017 Dr. Dearden discusses combination therapy and more in the website proper.

Written by
bkoffman profile image
bkoffman
CLL CURE Hero
To view profiles and participate in discussions please or .
Read more about...
29 Replies
Corkyrissa profile image
Corkyrissa

So happy for you. God Bless 😘👏🙏🏻🙏🏻

Philipoc profile image
Philipoc

Spectacular!! So happy for you

Elle_V profile image
Elle_V

Wonderful news!!!

PlanetaryKim profile image
PlanetaryKim

Congratulations Brian!

Susiecarer profile image
Susiecarer

Great news.

Susiecarer

BettinaB profile image
BettinaB

So happy, and grateful on behalf of all of us. Bettina

Jm954 profile image
Jm954Administrator

We need a WOW! button :) :) Great news

Wroxham profile image
Wroxham

Really good news to hear.

Sue

Irishcll profile image
Irishcll

Great news Brian and thanks for the update.

Regards

Michael

Dblair profile image
Dblair

Good going. May this good fortune continue to bring you only good news. You have been an inspiration and wealth of information for me and I thank you.

annmcgowan profile image
annmcgowan

Great news Brian thanks for sharing.

Ann

CAR-T fascinates me. Thank you for sharing all this.

Scott

louise66 profile image
louise66

Brilliant news - well done!

Louise :)

Indolent profile image
Indolent

Terrific to hear of your continued good progress. We're all following your journey with great interest.

PaulaS profile image
PaulaSVolunteer

Great news, Brian! So pleased for you. :-) :-)

Thanks for sharing,

Paula

BeckyLUSA profile image
BeckyLUSA

Congratulations, great news!!!!!!!

Superdad3 profile image
Superdad3

This is such great news and appreciate sharing this with us, I believe this is the key to addressing this and many other cancers.

Thank you!

vila profile image
vila

Fantastic News Brian!! You deserve it!!

Elizabetha profile image
Elizabetha

Excellent news! May your good health continue 👍😀

Peggy4 profile image
Peggy4

Happy news indeed!

Peggy😀

prosecco1 profile image
prosecco1

Fantastic news

Elle x

wmay13241 profile image
wmay13241

Fantastic news Brian. :-)

Justasheet1 profile image
Justasheet1

Awesome news Doc!

Jeff

SharonGH68 profile image
SharonGH68

Great news, Brian! You’re brave, generous, and smart. Very, very happy this is working out for you and that you made it through that most difficult treatment. Onward! Thanks for sharing!

Ashmom profile image
Ashmom

Yesss!

Ladydi49 profile image
Ladydi49

Awesome Dr. K. Continued wishes for wellness.

dreckman profile image
dreckman

Congratulations , Brian. I know you've had a long struggle with our common disease. Dave Eckberg

mnmnewtons profile image
mnmnewtons

Are you injecting IVIG now?

bkoffman profile image
bkoffmanCLL CURE Hero in reply tomnmnewtons

Yes. I have had ITP so that is one reason and the other is that I have no B cells to no plasma cells, so no immunoglobulins. They had fallen from low to even lower on my last testing.

Not what you're looking for?

You may also like...

Feeling nasty after my third and final day of lymphs-depleting chemo (FC) before my CAR-T cells on March 22

Hi, I wrote most of my last blog post https://cllsociety.org/car-t-blog/ on why I chose to come to...
bkoffman profile image
CLL CURE Hero

Finished breaking and started fixing: MRD - in the blood after CAR-T therapy

Hi, It was been an intensely dark and painful journey (see https://cllsociety.org/car-t-blog/ for...
bkoffman profile image
CLL CURE Hero

Me and my CAR-T- Part 1 on why I have moved to Seattle for 2 months

Hi, First day at the Seattle Cancer Care Alliance. Just orientation, history and physical exam,...
bkoffman profile image
CLL CURE Hero

Swimming, joy and sadness and MRD negativity

Hi, I got the great news that I am still MRD- more than 5 months post CAR-T For my reflections on...
bkoffman profile image
CLL CURE Hero

CAR-T update and more

Hi, Been busy and tired, trying to get ahead of what I need to do while spending many hours at the...
bkoffman profile image
CLL CURE Hero

Moderation team

See all
AussieNeil profile image
AussieNeilAdministrator
Newdawn profile image
NewdawnAdministrator
CLLerinOz profile image
CLLerinOzAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.