A humorous look at CAR-T cell therapy - CLL Support

CLL Support

23,323 members40,025 posts

A humorous look at CAR-T cell therapy

thb4747 profile image
5 Replies

A New Zealand comedian, and friend of my son, who was one of the first people in NZ to have CAR-T cell therapy (he travelled to Boston for treatment) has written an account of his experiences. Worth a read to cheer yourself up. Inexpensive on Kindle and other places.

mildtouch.nz/blog/2019/8/10...

Written by
thb4747 profile image
thb4747
To view profiles and participate in discussions please or .
5 Replies
SeymourB profile image
SeymourB

thb4747 -

At your suggestion, I bought this gem on Kindle. Yeah, took me a month to finish it. I read mostly in waiting rooms, and on the ceramic throne. I do disinfect my cell phone after the latter.

What a great book! I can recommend it to anyone on any type of cancer, but especially anyone dealing with family, chemo, blood cancers in general, and CAR-T.

David Downs is truly a very funny guy, and gave me a look at many of the practical aspects of DLBCL chemo therapy. I had a great time looking up some of the New Zealand slang and references, but I think one can read past them, and still get the nutrition that reading this book provides. It does give a nice comparison and contrast between New Zealand and American medical systems (and costs!).

It's hard to imagine how a person can remain so up-beat throughout 4 or more rounds of chemo and biopsies. I think when he writes, he enters a different zone that gives him that funny perspective as the only way of coping. It reminds me of the gallows humor my great-great-grandfather expressed during the Cival War here in the states. He was Irish, too.

He does admit to bouts of weeping and exhaustion, so the upbeat nature of the work is tempered. There are also sections written by other comedians and his wife.

One thing he came back to time and again was that on waking, he would ask himself what he could look forward to in a day, no matter how trivial. On nodding off for the night, he would review the positive events of the day. I pretty much do the opposite, and I'm an anxious wreck! I will try to develop that ninja-jedi skill Dave has.

I'll be looking into his other books as time permits.

=seymour=

thb4747 profile image
thb4747 in reply toSeymourB

Thanks. Glad you enjoyed it.

Emerfly profile image
Emerfly

Thank you for book recommendation. I have ordered it online . I watched a doc on BBC 2 called War in the Blood...there was little humour involved. I look forward to reading the humorous approach . Emer

thb4747 profile image
thb4747 in reply toEmerfly

Enjoy!

Emerfly profile image
Emerfly in reply tothb4747

Received the book by post the day before yesterday . I have so far read 100 pages and I love the dark humour. A lot of chuckling and laughing out loud. My 94yr old mother asked me was I reading comedy and I told her ‘yes a tragic comedy about cancer ‘ . Not everybody’s cup of tea perhaps but I am Irish !

Not what you're looking for?

You may also like...

CAR T-cell therapy

Hello I have been diagnosed with CLL/SLL previously I treated with Imbruvica( with previous...
htam profile image

CAR T Therapy

I am just curious if anyone in here has had CAR T therapy. I know it is not yet approved for CLL,...
DaleFL profile image

Car t therapy?

What exactly is cart therapy and when is it used?
Dawnclark profile image

Secondary Cancers after CAR-T Cell Therapy

From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This...
Jm954 profile image
Administrator

CAR-T Therapy Inquiry

CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the...
Naka profile image

Moderation team

See all
AussieNeil profile image
AussieNeilAdministrator
CLLerinOz profile image
CLLerinOzAdministrator
Newdawn profile image
NewdawnAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.