Patient Power Community

[Njsailorgirl]

For all..... check out Patient Power.....fantastically informative with conversations and videos by CLL specialists. Free to join. I’ve learned a lot from the specialists and talks by CLL patients.

[Hidden]

Patient Power is really good. They have great YooooToooob videos too!!

[UK-Sparky]

I agree good for forum American friends in particular. In Uk I use CLLSA and Leukemia Care.

UkSparky

[Wroxham in reply to UK-Sparky]

Agree Sparky.

[ladyprescott]

They come to my inbox and I look at each one. Very informative with all the specialists giving their best information. I even saw my specialist in a couple of the episodes, so very comforting listening to her speak. I agree, Sparky.

[MsLockYourPosts Passed Volunteer]

The videos by Susan LeClair on Patient Power about understanding your labs are invaluable. She has a gift for making the complex understandable.

Wierd auto correct! Corrected.

[Njsailorgirl]

Absolutely. Thanks

[SouthFloridaLady]

Andrew is a wonderful man, doing great things for us, IMHO!

[Njsailorgirl in reply to SouthFloridaLady]

Agreed

[Yvbb]

They are wonderful and very supportive. I learned so much by watching their videos. They reached out last week to me to hear my experience with Venclexta and arranged a video appointment with two Patient Power specialists from Seattle. Very thankful to be able to tell my story. It felt kind of healing. Amazing.

Yvonne

[PSP52]

Patient Power and the CLL Society and this wonderful group are part of my daily check in. There is also a facebook page which Andrew Schorr and Brian Koffman contribute to that I also check. It's the CLL Support Group page and I see that many of us here are members of that too.