Major nausea

[Mimi4times]

Was diagnosed with CLL in June 2017. I am in the Sit and Wait period and am on stage 2.

My blood work is stable and cat scans but am feeling nausea a lot; wondering what’s going on.

I am always worrying and stressing all the time😫

Any advise .

[Jm954 Administrator]

Although our first reaction is to worry and connect a new sympton to our CLL, not everything we feel or have wrong with us is necessarily related.

Please go to your Dr and tell them about your nausea but also your worry and stress. Sometimes there are simple solutions and you'll be able to feel reassured.

Take care

[Mimi4times in reply to Jm954]

Thank you!

[mgh348]

I had frequent flu-like symptoms including nausea before treatment. It's caused by cytokines, cell messengers.

[Mimi4times in reply to mgh348]

Oh no , I am in stage 2, what is your stage?

Weizer51

[mgh348 in reply to Mimi4times]

I never progressed from stage 0, but started treatment due to debilitating fatigue and flu-like symptoms. Have been on acalabrutinib on clinical trial for 16 months and feeling a lot better. Are you seeing a CLL specialist?

[Mimi4times in reply to mgh348]

Yes, seeing oncologist at Mayo Clinic in

Jacksonville FL; are you sure you were diagnosed with CLL and never moved passed stage 0. WOW how wonderful!

How long have you been in stage 0?

[mgh348 in reply to Mimi4times]

I go to Mayo at Jax also! Dr. Chanan-khan and Victoria.

[Mimi4times in reply to mgh348]

WOW!! Small world!! I see Dr. Sher here. Being seeing him for 9 months now . He told me this JAN that my blood work was stable as my cat scans. So, I don’t need blood work for another 6 months instead of 3 months! And cat scans in a year and not six months. He said this was s slow growing cancer. But, I worry a lot, starting

To have night sweats on upper part of body. And this nausea.

You did not have chemo??

[mgh348 in reply to Mimi4times]

No, only acalabrutinib, an oral targeted therapy.

[amberhead]

I frequently feel nauseous (almost every morning) and sometimes in the evening even though i am on W&W and no meds.

[Mimi4times in reply to amberhead]

Oh... had no idea this cancer caused nausea! My most dreaded feeling! I am in stage 2. What stage are you in?

Weizer51

[amberhead in reply to Mimi4times]

I am also stage 2. I have told my dr of the nausea and because my BW doesn't show a "cause" for it they kind of dismiss it. I have found this cancer causes symptoms in me that i haven't seen in articles. I also have shooting pains in my body. For the longest time i thought i had a bad ear infection because of the shooting pains in my neck, nope-dr hypothesizes (aka has no idea) that my lymph nodes are large and pressing on nerves. I also get sharp shooting pains in my chest (thought i was having a heart attack the first time it happened!) but it is just pain from this disease. Haven't seen others write about those type of pains either. I have heard of others talk of liver issues...i describe mine as being "shived" in the liver. It all of a sudden feels like someone stabbed me. Occasionally it is just a full ache there as well-that i can deal with, the shiving sucks! I have also recently (past 6 months) started getting bone pain. It feels like someone is sticking a hot poker in my bone marrow. Some times they are just annoying but sometimes they bring me to tears.

[Mimi4times in reply to amberhead]

Oh my oh my! My mother and two brothers had CLL as well; 😫.

I remember my mother had daily head aches and bone pain but that was when her white blood count went into the two

Hundred thousand. I don’t even know what it should be when you start treatment,????

Lord I don’t want any pains 🙃.

But was told that stress and anxiety can bring on nausea. Have had chronic. Disregard for over a year now so it is hard to sit and wait. One never knows where the cancer had started to regrow somewhere else! Thus caused me to worry!

Weizer51

[mgh348 in reply to amberhead]

Are you seeing a CLL specialist? They tend to take our symptoms more seriously than doctors who do not see a lot of CLL patients.

[amberhead in reply to mgh348]

Yes, she is a CLL specialist

[Mimi4times in reply to amberhead]

Oh my; just wondered if this was normal. Hope you get to feeling better.

[J-girl]

I am now in stage 3 and undergoing chemo. However I have been having trouble with nausea since I was on Watch and Wait. It is often worse if I get too tired or overdo.

[Mimi4times in reply to J-girl]

What stage did you have to start chemo?

Don’t they give you something for nausea?

[J-girl in reply to Mimi4times]

I started chemo at stage 3. Yes they gave me Zofran and Phenergan. I just wanted you to know you weren’t the only one on Watch and Wait with that symptom. For me it was combined with fatigue.

[Mimi4times in reply to J-girl]

Interesting, thanks!

[Purple_lady9999]

Nausea can be caused by dehydration, so try to increase your fluids. Sometimes when I get nauseous if I eat a few crackers it helps too. My nausea is from dysautonomia right now and not CLL, but these things helped when I was on chemo too.

My dysautonomia also makes me need extra salt and I am nauseous less if I get enough salt. But if you have high blood pressure, definitely do not increase your salt. The salt actually makes me less thirsty, and that is very unusual. My cardiologist is who told me to get enough salt. If I don't water goes right through me and I get dehydrated.

[Mimi4times in reply to Purple_lady9999]

Really , that might be what is going on. I take a dyuretic for my high blood pressure. I might have to increase my salt.

[Purple_lady9999 in reply to Mimi4times]

If you have high blood pressure, you probably shouldn't increase your salt. I would talk to the doctor who subscribed the diuretic. If it's leaving you dehydrated the doctor might lower your dose.

[Mimi4times in reply to Purple_lady9999]

Oh dear, thank you.

[Ashmom]

I had severe nausea a couple of weeks ago...it got so bad that I went to ER. Docs couldn’t find what was wrong and sent me home. The nurse discharging me happened to have mentioned vertigo, so I went home and looked it up. I found a few exercises (ie the Epley maneuver...etc). I tried this one and it worked immediately!

youtube.com/watch?v=mQR6b7C...(Not working as expected?)

It might be worth a try? It’s hard not to attribute our symptoms to CLL but sometimes it could just be something else (in my case anyway).

Ash

[Mimi4times]

Yes; lI have had vertigo; NOT FUN. Made me so sick and nausea I had to throw up! Your attached video would not open. Thank you anyway for sending to me.

[Lola69]

Have you had an MRI TO SEE if any nodes are pressing around the gastro intestinal tract? That can cause nausea.. speak to your docta. Could be pre menopause

[Mimi4times]

Yes, enlarged but not really pressing.

M

[sumok]

a simple non-drug thing to try is sea-bands - for motion sickness. my sister swore by them during her breast cancer chemo and we've used them on car and boat trips as well. they are soft stretchy wrist bands with a plastic bead that you position over the acupressure point on your wrist. no side effects, basically, so safe to try, and worth it if it works!

[Mimi4times in reply to sumok]

Thanks!

[Mimi4times in reply to Mimi4times]

Been so nauseas the past two days and it’s so dibilitating. I have not even started any form of treatment ! Lord, how does one get through all this? I’m really down.

Mimi

[Bsv39]

Hi there! Just ran across your opening post this afternoon! Hard enough hearing the words Cancer but to have your heart broken by your husband breaks my heart also. I pray God walks with you and gives you comfort and hope. I have had CLL for 18 years and am into my 13 week of treatment with Ibrutinib. Prayers for you and keep in touch. This site has helped me! Brenda

[Mimi4times]

Bless you