Firstly, I want to thank all of for sharing your experience and stories through this forum. I have been in the shadows reading and learning so much from all of you on and off for the past few months. I have felt a bit lost with some of the details regarding blood results and at times I feel a little confused. I need a specialist who can explain things in simple terms to me.
I was diagnosed with CLL in December 2014. I live in Perth Western Australia. Can anybody recommend a CLL specialist here in Perth. I have been seeing a haematologist on w + w and my 15 minute appointment is used up with him touching my neck for enlarged nodes and then he reads out my blood results. He is very reluctant to discuss or divulge information relating to this condition and his communication with me when I have asked questions about alternative or new therapy has been sarcastic and unprofessional. I often come away from my appointment feeling ignored and frustrated. I need to find a specialist on CLL someone who cares about the patient more than their pocket.
I hope someone is out there who is able to help me?