CCL diagnosed two months ago; on Imbruvica for 22 days now. I have had persistent respiratory infections for three months. Symptoms are constant shortness of breath, racing pulse from 100 to 105 beats per minutes, wracking painful coughs, fatigue and achiness, very hard to sleep at night laying down. Had a week or so of relief when I was on antibiotic doxycycline followed by regimen of prednisone (steroids). Miserable yesterday and today. Does anyone have any suggestions, ideas? Thank you.
Michael Irishgreek
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Irishgreek
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Have you had a diagnosis Michael? Seen a Respirologist or had a bronchoscopy?
I'm currently going through this for aspergillus pneumonia, a fungal opportunistic infection, and can sympathize with you, but you need to get this seen too.
Talk to your treating doctor and ask for a referal to Respirologist
Funny you dsaid that, five hours ago I asked my primary care doctor and oncologist to please tackle this head on. About 10 minutes ago they called and they are referring me to a pulmonologist. Thank you.
In the hospital I had a Pulmonologist as well as the Oncologist and continued follow up with him after I was released. I hope this specialist can do something for you!! Good luck!!! In a few weeks of treatment you'll be fine again!
I had pneumonia three times before I could stay on Imbruvica. Was hospitalized for it and had IV drugs each time plus antibiotics I would take at home afterward. I had started on Imbruvica and was only on it for a week before getting so ill with what turned out to be pneumonia. Please see your Dr., maybe you need hospitalization to finally get over what you have. They take you off the Imbruvica in the hospital and then start you up again when you are released from the hospital and off any Rx drugs that could interfere with it.
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