Upper Respiratory Infections are really hurtin... - CLL Support

CLL Support

22,508 members38,657 posts

Upper Respiratory Infections are really hurting me...

Irishgreek profile image
5 Replies

CCL diagnosed two months ago; on Imbruvica for 22 days now. I have had persistent respiratory infections for three months. Symptoms are constant shortness of breath, racing pulse from 100 to 105 beats per minutes, wracking painful coughs, fatigue and achiness, very hard to sleep at night laying down. Had a week or so of relief when I was on antibiotic doxycycline followed by regimen of prednisone (steroids). Miserable yesterday and today. Does anyone have any suggestions, ideas? Thank you.

Michael Irishgreek

Written by
Irishgreek profile image
Irishgreek
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

Have you had a diagnosis Michael? Seen a Respirologist or had a bronchoscopy?

I'm currently going through this for aspergillus pneumonia, a fungal opportunistic infection, and can sympathize with you, but you need to get this seen too.

Talk to your treating doctor and ask for a referal to Respirologist

~chris

Irishgreek profile image
Irishgreek in reply to Cllcanada

Funny you dsaid that, five hours ago I asked my primary care doctor and oncologist to please tackle this head on. About 10 minutes ago they called and they are referring me to a pulmonologist. Thank you.

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply to Irishgreek

Great!!

in reply to Irishgreek

In the hospital I had a Pulmonologist as well as the Oncologist and continued follow up with him after I was released. I hope this specialist can do something for you!! Good luck!!! In a few weeks of treatment you'll be fine again!

I had pneumonia three times before I could stay on Imbruvica. Was hospitalized for it and had IV drugs each time plus antibiotics I would take at home afterward. I had started on Imbruvica and was only on it for a week before getting so ill with what turned out to be pneumonia. Please see your Dr., maybe you need hospitalization to finally get over what you have. They take you off the Imbruvica in the hospital and then start you up again when you are released from the hospital and off any Rx drugs that could interfere with it.

You may also like...

CLL with upper respiratory infection

the past three months I have suffered from reoccurring upper respiratory tract infection. After...

Upper respiratory infection for four months

For the past four months I have been suffering from an Upper respiratory infection. After being on...

Lung and respiratory tract infections

away from having pneumonia. He put me on some antibiotics but the recovery has been longer than...

Strategic Masking to Protect Patients from All Respiratory Viral Infections

Most SARS-CoV-2 infections are now no more burdensome than the infections caused by...

Ibrutinib for chronic lymphocytic leukemia in the setting of respiratory failure from severe COVID‐19 infection: Case report and literature

leukemia in the setting of respiratory failure from severe COVID‐19 infection: Case report and...