CLL Support Association
8,923 members14,255 posts

Road to a BMT... oops just got there (Day+10)

They did warn us that day 7-14 post transplant would be the worst and like clock work it has arrived.

Mark’s immune system (neutrophils) are at .1 (normal range is 1.5 - 8), WBC is a 1.0 - this has been and will continue to be his toughest week. We are also hopeful the donor’s marrow starts to take over and work it’s magic.

Mark has had a really tough couple of days and has been unable to function. No energy due to low blood counts (chemo overload) and severe migraines due to high blood pressure, a side effect of CYCLOSPORINE which he is receiving twice a day to battle GVHD (Graft versus host disease) and he will continue to receive for several months.

It will take some time for us to know if the engraftment took. At the 30day marker, Mark will have a specialized blood test (Chimerism) to determine the % of donor vs. his own, to see if the donor is taking over.

He has not been able to keep much down and as you can imagine it is wearing him down.

On the positive side everything that is occurring is expected and there have not been any surprises. We are doing our best to just breath and take one day at a time, so when it is a good day we can enjoy each other’s company and be present with laughter, love and appreciation.

Take care,

NMMP

20 Replies
oldestnewest

Wishing you both more good times than bad through this tough, arduous treatment. Sending massive best wishes for the very best of outcomes. Stay strong.

Best wishes,

Newdawn

5 likes
Reply

Sending love and strength to you both both.-bill

1 like
Reply

I wish your husband a speedy recovery and a successful transplant!!

2 likes
Reply

Well done for staying positive through the toughest of times. Sending my very best wishes for a good recovery soon, you're both in my thoughts.

Jackie

3 likes
Reply

Keep up your remarkable strength and wisdom ! I think this is really helping your husband move forward

All the best, Ileana

2 likes
Reply

Good luck!

3 likes
Reply

Thinking of you and hoping for more of the laughter days and the coming of days of evident healing.

Reply

Wishing you both well 🙏

Reply

Be well. Our thoughts are with you.

Reply

I hope that next week is a better one. New guys are duking (not ducking) it out with the old ones right now - not fun for the host, but once they start taking over things should improve.

1 like
Reply

Wishing you both strength and a successful transplant.

Bub

Reply

You are incredibly strong. Hang in there. My thoughts and prayers are with you and Mark. Dale.

Reply

Thank you for sharing. Yes, taking it each moment at a time and then one day at a time. I'm praying for the best and possible outcome. I feel grateful to hear that its going as expected. Praying...

Reply

Hoping and praying the Bmt is successful.

Reply

Thinking of you both during this time. One day at a time is a positive thing to do.

Reply

Keep strong my prayers are with you

Reply

Praying and wishing all the best thanks for keeping us updated

Reply

I hope you both are trying to stay positive and strong.

Jeff

Reply

He's in our thoughts. Keep fighting!!

Reply

I hope things are improving.

Reply

You may also like...