I just finished my 4th of 6 treatments of FR. The recovery is longer each weekend after treatment. The first month I was sick for a day. The second round a couple of days. Treatment 3 took me out the entire weekend and Monday. The 4th round... has been miserable. I spend the weekend in bed as well as Monday. I am not looking forward to next month, other than being one month closer to being done.
I try to plan for it, but it is like planning for the flu, abdominal pain and extreme fatigue. I wondered if the Neulasta that I have on day 5 to help with white blood cell stimulation. I spoke with my hematologist / oncologist and this is normal. Just two more treatments and I will be done, for a while.
Outside of the week of treatment and avoiding sunshine, (due to antibiotic therapy), I typically do not feel sick. I have some fatigue, but no more than anyone else who works and has responsibilities at home. The most difficult part has really been the decision to have chemotherapy. While I am not the typical patient or presentation of CLL. My white blood cell count was decreasing and got down to 1.5 and my ANC was 0.9 (this was really what helped me decide to pursue treatment)
All of this is a great reminder of what and why I am doing this. Thank you all for those who have written and encourage others.