NEW - local support group for those in Cardif... - CLL Support

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NEW - local support group for those in Cardiff and the South Wales area affected by a chronic blood cancer like CLL

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin
5 Replies

If you are close to Cardiff this is a great opportunity to join us and meet up with others living with CLL and similar conditions, make new friends and help us shape this new group together.

If you are interested in joining us on Wednesday 11th May at 3.30pm  for our first meeting  please contact us by telephoning Nickey at LEUKAEMIA CARE on 08088 010 444 or by email to care@leukaemiacare.org.uk

or just  PM me  here in the community.

As a local to Cardiff i am very excited to be  on hand to help develop this partnered resource between Leukaemia Care and CLLSA  with the support of Cardiff clinicians,  

Cardiff Central Library is right among the shops and cafes and also houses The Citizens Advice Bureau with closest parting next door at John Lewis. Cardiff central train station and bus services are a few hundred yards away. So plenty to do if you pop into town for the afternoon by train , bus or car.

Later on in the year we are hoping to meet in a few other South Wales locations to help seed local support.

Nick

 

 

 

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HAIRBEAR_UK profile image
HAIRBEAR_UK
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Unknown-Unwanted profile image
Unknown-Unwanted

Nick, Great news! 

Are there plans to set up any i. England in the future? 

Thanks   

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin in reply toUnknown-Unwanted

Hi UU

It is very difficult finding local support  

Leukaemia care and Lymphoma Association do have a network across the UK of local support groups  for people with blood cancers, but not in all areas.  They do look for opportunities to expand these if people want to come together in an area where there is not a local support group, If contacted by patients/advocates they will help with setting up a local support group..

I recommend that CLL people  seeking a local group attend  an existing LA or LC  support group meeting if seeking local support, having visited a few recently and been privileged to be able to spend a really uplifting time with people living with similar challenges.  

If there is nothing in your area and a group wants to form get together I would talk to Leukaemia Care or Lymphoma Association about helping you do this

Leukaemia Care listing leukaemiacare.org.uk/suppor...

Lymphoma Association Listing lymphomas.org.uk/how-we-can...

Best wishes

Nick

 

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin

 Calling all those close enough to Cardiff -  The Cardiff support group meeting is now just two weeks away;  Weds May 11th - 3.30pm . This really is a great opportunity for us to establish much needed support in the Cardiff area. Prof Chris Fegan is supporting the group as medical adviser and prof Chris Pepper may also be able to join us at this first meeting on Wednesday 11th

We are seeking your help to establish this group and join us if you can 

The support group  is being run jointly by Leukaemia CARE and the Chronic Lymphocytic Leukaemia Association (CLLSA)   

First meeting: Wednesday 11th May at 3.30pm – 5pm at Cardiff Central Library  cardiff.gov.uk/ENG/resident... 

The group   welcomes patients, carers, family members and friends looking for support, reassurance and advice as well the chance to chat to others who understand.     

Future dates

Wednesday 29th June 3.30pm – 5.00pm

Wednesday 14th September 3.30pm – 5.00pm

If you would like to know more or attend please contact:

Nickey Bate by email at nickey.bate@leukaemiacare.org.uk or Telephone 08088 010 444 

Or  me at nick.york@cllsupport.org.uk

Meetings coincide with the opening times of the Citizens Advice Bureau within the library, allowing you to access benefits advice relating to your cancer. Closest parking is next door at John Lewis. Cardiff central train station and bus services alight a few hundred yards away

Looking forward very much to meeting 

Nick

 

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin

First meeting tomorrow: Wednesday 11th May at 3.30pm – 5pm at Cardiff Central Library

Drop in for coffee and cake if you are in the area

Nick

PaulaS profile image
PaulaSVolunteer in reply toHAIRBEAR_UK

Sorry  i can't be there.  Hope it's a great time for all.... :-) 

paula

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