First consultation after starting treatment

[Ukuleleboy1]

I have my first consultant meeting since starting treatment. Can anyone help me by letting me know what blood test numbers are key for me to monitor. I guess lymphocytes is the key one.

I’m on Imbrutinib. It’s been three weeks and so far quite manageable. Bit of tummy trouble and a few mouth ulcers but all manageable

Thank you for your help

[Coldplaybest]

I'm really interested in any replies that you get. I am 76 years old and begin Ibrutinib on Thursday. I'm desperately hoping that it reduces my lymph nodes.

[Ukuleleboy1 in reply to Coldplaybest]

Just to wish you the very best of luck. Mine have certainly reduced but my health situation isn’t typical.

[Skyshark]

Absolute lymph count will indicate response to treatment.

Others to watch are :-

Platelets, these stop bleeding.

Absolute neutrophil count, this gives an indication of susceptibility to infection and low counts can lead to sepsis.

If red blood cell count and haemoglobin were affected then they are worth tracking.

All the rest, let your doctor worry about them. They are going to tell you to drink more.

healthunlocked.com/cllsuppo...

The CLL society spreadsheet tracks a whole lot more but shows "normal" ranges for US measurement units (and dates) so isn't very suitable for UK.

[Ukuleleboy1 in reply to Skyshark]

Brilliant. Exactly what I needed. Thank you

[whitewsu]

Thank you for the information Shyshark. Can you tell me where to find the spreadsheet you talked about above? I live in the US and might need it soon.

[Skyshark in reply to whitewsu]

Download the template from here.

cllsociety.org/cll-sll-pati...

[whitewsu in reply to Skyshark]

Thank you!