Feeling great, I finished Obinutuzumab treatments today. I gained 10 pounds during the process. Hoping that is short lived. I will continue with daily Venetoclax until March.
A couple of bumps in the road in the beginning, but overall a positive experience.
Hi Wendy I started Dec 2022 on V & O finished O in June i gained about stone 😱. Since than have lost about 6lb am doing more walking. I had several bumps on the way ..I was glad to finish O.
Hope you continue to do well..😊
Continued success to you as well.
Just seen your response to Wendy. I thought you were supposed to lose weight not put it on with O.
I lost 2Kg on first infusion of O. Over 500 billion (x10^9 not trillion) lymph cells died in 5 days.
All dieting has gone to the wall, it was only supposed to be relaxed for first 8-9 weeks and at middle of cycle 8 I'm now +8kg from that low post first IV weight.
Oh Wendy 328, I didn't know that O causes increases in weight. I need to check what I'm eating as I can put it on just by looking at something nice. Glad you're feeling good.
I guess I am one of the lucky ones. Not pleased about it at all.......
Congratulations!
Congrats, one down and one to go...
well done, I’m a few weeks ahead of you. It’s a good milestone to reach, another step towards a brighter future. I too put on a bit of weight, (although consultants don’t think it is a side effect, I know I’m not the only one) I think it was because my body was so poorly before starting treatment it was struggling to keep nutrients in and now it’s working a lot better. With a little bit of added effort I’ve managed to maintain back to my original weight that I’m happier with now just on the v. To be honest I’m just happy to be healthier right now and know it will all re balance in time.
Hi. Thats great news and well done you. 18 months after completing the year of O & V I am feeling great and loving life. Thanks to these amazing drugs the future is so much brighter for us. I too put on about 10 lbs during treatment but it came off easily once I had completed the course and had the energy to start hiking and biking again. Lots of luck with the rest of the venetoclax. Patrick
That's wonderful, Wendy! I'm so glad to hear you are doing well. Thank you for sharing your experience 😊 Best wishes for continued success.
Wendy328 -
I've gained weight, too. But I tend to blame changes in my own eating behavior, plus additional fatigue while on a triple treatment, which not everybody experiences, I think.
I'm counting calories on my FitBit (along with ounces of water and steps, etc.)
In any case, congratulations! I rang the bell when I finish Obin, but still had months of pills to go. I feel some energy returning, and hope you do, too!
=seymour=
CONGRATULATIONS. I at first lost 15 lbs after the first few infusions but it all came back and I gained a few extra. I finished my last O infusion 3 months ago and despite a better healthier diet and increase in excercise, I still have not shed the extra weight.
UGH.
Any one have similar weight gain issues and if so, what did you do about it?
i have a friend who just started V&O treatment and he saw a drop in Red blood cell count. I did not see that listed as a side effect on the Obinutuzumab site I researched. Did anyone else experience that when on O? (PS I am a CLL patient as well having gone through FCR 8 years ago and doing well so far).
Yes, my RBC did drop. I believe that’s why everything is closely monitored. Therefore never reaching a dangerous level.
CLL diagnosis with Obinutuzumab and Ventoclax offered as treatment
Musicguy's finished 6 month's treatment with FCR
Obinutuzumab 
Obinutuzumab
