Shoulder pain

[Poppymillie]

Every time it starts to turn colder at night I keep waking up with pain in my shoulders, when I get up in a morning and start to use them it goes away. This has been happening for the last 3 winters. Can anyone explain what it might be.

[Hidden]

Hello Poppy Millie,

I believe that CLL makes us more susceptible to the cold. I never used to feel the cold. Since being dx'd in April of last year, I have developed Raynaud's. My finger's turn white and go numb. Even at this time of year! So I'm guessing it's related to having CLL. I wonder if anyone else has problems with the cold?

[francc in reply to Hidden]

I have 3 tennis friends with Raynaud's. None have CLL or any other disease...and they have had it most of their adult lives. But no one yet can say if CLL can contribute to it.

And as for shoulder pain, I have that from Ibrutinib....or at least that is when it began. The pain began in many joints, but is now limited to the shoulders. And exercise does help a bit.

Our age is certainly a factor in joint pain. Aging is definitely not for sissies, of which I am one...for sure. :o)

[mgh348]

In cold weather my feet cramp at night so I wear socks to bed. Maybe you could wear a very warm top to sleep in.

[Hidden]

I'll try not to be too sarcastic, but the common diagnosis is "getting old." Compounded by weakened muscles which tend to get strained easily.

My self-medication is a warmer long sleeve nightshirt and a small electric heating pad left plugged in and by the bed so if I awake with an ache in the morning I can turn it on and quickly broil my shoulder for a while.

Btw - I am a strong advocate of electric heated mattress covers rather than electric blankets, which tend to be too heavy for my taste and I often kick off in my sleep.

[francc]

A waterbed is my solution with a down cover. And I have never been a hippie. LOL.

[hammyj]

Funny but I also feel the cold a lot more than I used to. I also feel colder as I feel hungrier and I often have to take off a layer during a meal as I warm up. As for shoulder pain, I had the most excruciating pain I've had in my shoulder during treatment. It was so bad I could hardly move with it. I now have a regular dull ache which I have learnt to live with (although the chiropractor did help a lot). In his book, Lance Armstrong talked about bone pain which people who've been through talk about and doctors say doesn't exist (as did mine) but I can honestly say that this pain did, and does, go right through to the bone and was like no painnive expereienced before or since.

[canadagoose]

Physical therapy, or if you are in the UK, physio. And keep the shoulder mobile.