Hi, I was diagnosed with CLL this past summer and I'm currently on watch-and-wait. The Haematology Dept conclude I've probably had it for the past 3-4 years as some of my lymph nodes were very slightly enlarged then but none of the other symptoms were showing up then. I had a check-up just before Christmas with the doctors satisfied that things are OK.
However, about 2-3 weeks ago, I started having pain in my right shoulder. Deep Heat won't ease it. A google seach has shown that shoulder pain can be CLL-related. Has anyone else experienced shoulder pain with CLL?
Thanks, SAT_poet
Written by
SAT_poet
To view profiles and participate in discussions please or .
Welcome to the club that none of us wanted to join. Your experience is familiar to most of us. CLL usually develops slowly and the early indicators are often dismissed for a few years as "probably an infection". Fortunately early detection and treatment is not needed.
-
Please look for the boxes on this page labeled "Pinned Post" and "Related Posts" especially:
,-Welcome to the club that none of us wanted to join. Your experience is familiar to most of us. CLL usually develops slowly and the early indicators are often dismissed for a few years as "probably an infection". Fortunately early detection and treatment is not needed. -Please look for the boxes on this page labeled "Pinned Post" and "Related Posts" especially:healthunlocked.com/cllsuppo...healthunlocked.com/cllsuppo...healthunlocked.com/cllsuppo...-And for past postings about shoulder pain see these lists:healthunlocked.com/cllsuppo...healthunlocked.com/cllsuppo...healthunlocked.com/cllsuppo...-Len Reply (2)ReportMoreJammin_Me7 hours agoWelcome SAT_poet, this disease is so variable I wouldn't be surprised.However, we do go through a process when coming to terms with this illness, where we associate many other occurrences with CLL. I would check out other medical problems through your doctor before assuming it is part of CLL. There is no sense in suffering something else that could be solved.I'd like to point out that this forum, The CLL Society, and LLS are the better choice for CLL information, Google, while not evil, leads to many old studies, misinformation, and even potential scams. The closer you stay to verifiable, well regarded, sources .gov or .org the less worry you may face. There are a few I've missed but take note of those when mentioned in posts, you get more bang for your buck.🙂 Reply (3)ReportMoreNext postsPaxlovid treatment for Covid ? Hi I have unfortunately tested positive for Covid two days ago. I notified my CLL nurse who then passed on my details to a ‘rapid response’ team. They have...Juliette02•17 hours ago9 RepliesCLL and ParkinsonsDiagnosed CLL Npv. 2018, started Ibrutanib early 2019 and been on since, bloods good so far. Recently diagnised with mild form of Parkinsons. Anyone else with...Tsadams•21 hours ago2 RepliesNo grant money for CLLI have been taking Imbruvica for CLL for four years with good success, and have been paying the ridiculously steep price for the drug with a combination of my...TheTraveler•1 day ago12 RepliesWhat is high-risk chronic lymphocytic leukemia in an era of targeted therapies?An article published in Feb 2023 in Frontiers in Oncology provides a summary of how targeted therapies have changed our view of what constitutes...CLLerinOzAdministrator•1 day ago4 RepliesTo the experienced hands (like Neil, Jackie, Newdawn and others): What exactly does a serum protein electrophoresis tell you?To all: I know there are very experienced hands out there who have seen the whole gamut of tests, so this question is for you. The serum protein...gp7591•1 day ago2 RepliesView more posts Related PostsShoulder and hip pain Newly diagnosed with questions Shoulder painNewly diagnosed husbandBoyfriend newly diagnosed with cloview more posts Moderation teamSee all Contact usAussieNeilAdministratorCLLerinOzAdministratorNewdawnAdministratorPinned PostsSee all HU CLL Support Community Guidelines along with further recom...Newly diagnosed with Chronic Lymphocytic Leukemia or Small L...30 tips for living well with CLL (an update of "Coping Strat...12 TIPS to get more out of this CLL Support forum - and help...VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (C...TopicsAll posts (10119)Living with CLL_SLL (2265)Treatments & trials (2050)Research news (1963)General discussion (1301)CLL_SLL information (784)See all topics Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the
I'm sorry, the above was an accidental repost from someone else. No idea how that happened.
I have had left shoulder pain for a while and I
Blamed CLL and/or my Venetoclax treatment. It was intermittent variable pain and in particular disrupted my already erratic sleep. I eventually found a really good physio (at a local cancer support service) who diagnosed it as soft tissue injury in the shoulder probably due to de-conditioning from lack of activity due to so many bouts of illness over the last few years. A gentle exercise program, regular adjusted as I improve, is slowly easing the discomforts.
Have you been considered as having polymyalgia Rheumatica as your symptoms are classic for that. I have had it for five years and CLL four and half. I came off the steroid treatment in November ‘22 when I felt great. Unfortunately the pains are coming back, especially at night. I’m constantly asking myself is it PMR or CLL. Still haven’t found the answer yet.
sorry a correction to above post. PMR is across both shoulders neck and upper arms. On reading your question again I realised you are saying right shoulder only.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Newly diagnosed 
Newly Diagnosed CLL plus CTCL
Newly Diagnosed with SLL and unsure of what lies ahead.
Joint pain/shoulder pain on Imbruvica.. HELP! 
Shoulder pain unbearable 
