Had my hemp visit yesterday and my WBC is stable at 150k but my platelets have dropped to 127k. Pretty disappointed as all my other numbers have been pretty good all along. We are going to wait 3 months before we make any decisions but if it continues I am looking at treatment in the next 6-12 months. It could be a fluke and they could rebound before my next appt but I want to prepare for the worst and pray for the best.
Surprisingly I'm ok with it. Being young and relatively healthy I'm confident (as is my doctor) that an abbreviated course of FCR will work quite well. I am 13q non mutated and my only symptoms have been fatigue and some swollen lymph nodes. Now I have to decide if I can continue traveling across the country from LA to NY and travel during chemo or if I need to find a new specialist in Los Angeles. I absolutely adore my doctor he's an amazing guy I can't imagine continuing this journey with someone else but he's getting me names from Dr Rai to investigate.
Can any members share their treatment experiences with FCR? Would you have been able to fly and look after yourself? I'm single and my family is in NY I have friends in LA who can assist me but they aren't going to nurse me. Has anyone been able to raise their platelets through natural methods?
I appreciate you all and wish you the best. Thanks in advance for your responses.