Hello, new to the site. I'm a CLL'er since 2011, age 60 and I've had 3 bouts. The most resent go to treatment Imbrivica 3mos ago. Started to feel ODD! Weakness, fatigue all normal s/e. But, now it seems to have been affecting my heart. I normally have low BP, but this has been ridiculous. Hydration of course was the 1st thing to address. Which by the way; I felt I had under control. March 2018 I got diarrhea for some strange reason & heart issues started about same time. But, no one could pin point it. Now April still having heart issues that have sent me to ER 3x's. They don't know what to do with me. (Oncologist was out of town.) BP got as low as 86/58, scary. I can get up, move around & feel fine. Make get to ER and BP looks normal. It only appears when I am at rest. It slowly creeps lower & lower.
I've stopped Imbruvica and the other alternative is regular IV chemo. ICK!
I find that with past treatments, I have always been in that odd 1% of people that gets the last system on the list. But, it's severe sinus issues, fatigue, weakness.
If anyone has had these episodes, I'd appreciate a haller.
If not use this info to be informed.