As you can tell, I am new to this board. I was Dx in May 2018. From older blood tests obtained from my internist (who is about to be history!), it seems that I have had CLL since 2014 or 2015. He missed the out of range values for WBC and ALC, never told me, and I never got copies. My absolute lymphocyte count was definitively over 5000 in Feb 2015 (WBC was ~12K). I currently am at 10-12,000 absolute lymphocyte count in May 2018 (WBC is all over the place - from 18K to 30K, latest is 20K). No labs done between 2015 and 2018.
Now I have been told that if I have an abs. Lymph count of 10K or more that I should be immune compromised. I don't appear to be in that I haven't had a cold, flu, or communicable disease in about 10 years. No infections, nothing, and we live with 2 dogs who get into everything and they sleep with us. For that matter, I am still totally asymptomatic. My CLL was confirmed by Flow cytometry. By FISH, I have no mutations. By sequencing I am p53 normal and IgVH mutated at 8.2%.
When shall I take precautions to avoid any excessive contact with possible infection sources? None of the Dr's or oncologists that I have seen so far will consider my "old" lab work as relevant as it was not done by them - and there was no flow cytometry data. I was definitely high in WBC and ALC all those years - an now clearly have CLL. Does immune function become affected later in the progression, or am I just a freak of nature?
I also have lots of allergies - especially since I live in California. I am even allergic to my dogs. Allergies get so bad that I go into sneezing fits for hours at a time. That too indicates a strong immune system. None of this makes sense to me. I've seen my flow cytometry data and can tell I have CLL. Am I just lucky so far? Thanks.