Just wondering how others deal with this situation, after having a really nasty episode of sepsis (and septic shock) following yet another chest infection (8 in 4 months, some at the same time, that in itself has been tough) I am now feeling very afraid of going out and mixing with friends at public events - anywhere where there can be the risk of infection.
I also now know about 'post sepsis syndrome (PSS)' its not something you get over quickly!! But as i am starting to get a little stronger and as the brain is starting to work I am realising that I will easily go stir crazy locking myself away from the world, I'm normally very sociable and hardly home. I am working on ways so that i don't have to go back to work and can work from home (work was an air conditioned office with a number of young mums always with colds!) but my job also entails meeting lots of people, large events, training courses etc. I almost feel terrified of going back!!
Having found out about PSS it seems that this anxiety is part of the condition, but living with anxiety is not great and i want to try and fathom how i can get back to living, but safely by reducing my risk of yet more infection. Any thoughts?
Just as an aside, i was not that familiar with sepsis, but noticed large posters up with just the word on in hospital on a routine visit, there was no information about what to look out for with sepsis, just that its a killer, so i looked it up myself. Soooo glad that I did because as i was succumbing to this awful condition my memory jogged and i wondered if sepsis was what was affecting me (along with sweats, shivery, exhaustion, no appetitite etc i started having difficulty breathing and realised my heart was beating fast plus felt very sick) I was able to call 111 (UK service) and they got me an appointment at the walk in clinic within 20 mins - the rest as they say is history. Ive realised since that for vulnerable people, such as ourselves sepsis can be life threatening, so just thought i would raise it here, just incase someone else wasn't as familiar with it too - we all need to be vigilant on this sneaky bacterial infection!
I am nearly 56, 7 years with CLL, my count was up to 89 in hospital but had dropped to 63 on discharge and is technically stable, evidently! I am on iron as slightly anaemic. I just saw my consultant on Tuesday for follow up check after the hospitalisation, and was surprised to be told i had tonsillitis, i knew one was a little swollen and had been mildly sore on and off for a couple of days (you should see my neck gland! but then again its been up for 4 months now so not spectacular to me anymore!) but i had no idea it was tonsillitis, that usually knocks me for six, so no idea how i can have it and not be really ill again. Any thoughts on this as well?
Thanks everyone, its such a comfort to know that i am not alone on this journey.
cheers, Angie x