“I had no immune system for months after my bo... - CLL Support

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“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too.

hsouter profile image
30 Replies

“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too. It’s easier than you think.”

A.M. Carter

Mar 22 · 12 min read

medium.com/@amcarter/i-had-...

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hsouter
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30 Replies
cajunjeff profile image
cajunjeff

This was a very helpful article, thanks for posting it. Loaded with good and common sense information for anyone with a compromised immune system.

Sushibruno profile image
Sushibruno

Thank you for sharing hsouter.

WinJ3 profile image
WinJ3

Thank you for taking time to write and share this! It’s loaded with lots of good common sense information that could save lives.

I am more motivated to turn these into habits 😁

Win

cllady01 profile image
cllady01Former Volunteer

Excellent article. Thank you--I am going to see about getting it printed in our

Newsletter or at least have the url printed, though everyone does not have a computer access.

Newdawn profile image
NewdawnAdministrator

Excellent advice with simple but effective solutions. Thanks for posting!

Newdawn

Peggy4 profile image
Peggy4

Great advice. Thank you.

Peggy 😀

DMary profile image
DMary

Great read. Thank you, I needed practical and non-scary advice.

josephinef profile image
josephinef

Very sensible advice.

Thanks for sharing.

Santoshax profile image
Santoshax

Thank you for posting and sharing.

Great, practical advice.

🌻🌈🇦🇺 Helen

1ofakind profile image
1ofakind

What a great article!

So simple and direct and the humor of those misconceptions kind of puts it all in perspective!

Thanks for sharing !!

Be Well!!

very profile image
very

Great, advice.

JigFettler profile image
JigFettlerVolunteer

Very helpful. Thank you.

A must read for all.

Jig

Psmithuk profile image
Psmithuk

So helpful as we try to steer our way through the advice, good and bad. Thank you so much for posting. We could do with this in full in this forum I think, for people like me who rarely follow up url s!

Cx

jaypax profile image
jaypax

That is a very helpful article. A lot of sound common sense. Well done you! Thanks very much for sharing your experiences with us . Best wishes. Jeff

Fran57 profile image
Fran57

Thanks very much; very well written.

Fran 😉

Patc890USA profile image
Patc890USA

Can anyone tell me why she had to avoid strawberries?

hsouter profile image
hsouter in reply toPatc890USA

Strawberries often carry molds.

Patc890USA profile image
Patc890USA in reply tohsouter

Thanks I figure it was something like that and the fact that strawberries have many

crevices etc for things to hide.

hsouter profile image
hsouter in reply toPatc890USA

It seems that irrigation water can carry nasty things....

RSixtyThree profile image
RSixtyThree

Thank you for sharing!!!

Smakwater profile image
Smakwater

Good read hsouter,

You're on the money with this one!

These behaviors are quite similar to what I practiced the past 18 months during treatment having to travel frequently on planes through Seattle and Portland. There is some adjusting for caution depending on the risk level presented by individual circumstance. However one can overcome much with increased awareness, and for me these behaviors are a lifestyle through habit.

During this time I did not acquire a single symptom of illness.

I am also reminded that these simple but effective practices are what my mother taught me as a child. It was only a few generations ago that running hot and cold water, refrigeration, disinfectants, vaccines, antibiotics and the like were not even common. I remember teachers at school inspecting students hands to assure that they were washed. I think to some extent society has become complacent through the aforementioned luxuries.

In the recent past when vaccines and antibiotics were non existent even the most healthy people learned to avoid illness and death through the practice of cleanliness and social management. Examples from recent history: Polio - Cholera - Typhoid - Influenza - Measles - Small Pox - Bubonic Plague...

Add - livescience.com/worst-epide...

With the ever increasing populous and mass international travel it is obvious and apparent that these simple, yet effective practices once passed on by parents will once again become the required norm.

I think my Mom must have been a scientist.

Thanks hsouter - A.M Carter

JM

hsouter profile image
hsouter in reply toSmakwater

My late step-mom is my model. She was an old-school nurse and managed to live to 86 in spite of two serious bouts with cancer, idiopathic hypertension and heart disease. She taught me how to cook and eat in a moderate healthful manner, wash my hands always and even keep my hair brush and comb in my bed room and NOT the bathroom. Our Elders really understood how simple things done consistently can keep us safe and well.

I treasure this knowledge, too!

mikeS101 profile image
mikeS101 in reply tohsouter

Do you mean essential hypertension, or if was idiopathic, what did the doctor do to cause it?

Smakwater profile image
Smakwater

You are the treasure and a blessing for passing it on.

Sepsur profile image
Sepsur

Great article - thanks for posting

Que-sera-sera profile image
Que-sera-sera

I have probably mentioned before in this forum, that I'm NOT someone who gets the flu easily, even now with CLL I still dont, and I think is precisely because it was in the 90's when I became "religious" about washing my hands!

I remember I used to wash my hands prior to leaving the building because I was going to lunch, but then I was like; ok I'm watching my hands now, but I'm still going to touch a ton of things before I get to eat!

So, ever since then, I became slightly "ocd" about making sure my hands are clean, especially before touching food.

And I say "ocd", not in a bad way, because you almost have to these days, when I'm actually even wiping bottles and things that I brought from the store and that I will touch with clean hands, forgetting that others touched before I brought home, including the cashier that rang everybody else's groceries!

Anyway..it might sound like much but I think is helping. Theres also one other tip, that I dont remember where I saw and I dont hear about it often, but someone said it was a good idea, after being out in public, to blow your nose and cough into a napkin and that you might actually be expelling something trying to get into your nasal passages.

Dont know if anybody has heard that or if it's crazy, but I do it...."just in case" ;-)!

Donnamccll profile image
Donnamccll

Thank you so much for sharing this article.

HikerBiker profile image
HikerBiker

Many thanks for the straightforward advice. I especially appreciate your dispelling a number of the myths that have been circulating, some supposedly lessons learned from China. People are so desperate for things they can do to protect themselves that they don't stop to really consider whether the proposed step makes any sense. I laughed out loud the first time I read the suggestion to drink every 5 minutes to wash the virus into your stomach. At least that's something that won't hurt you - the hair dryer up the nose, on the other hand....

Be well!

lexie profile image
lexie

Well timed, straight talking post. Thank you.

Emerfly profile image
Emerfly

Thank you for sharing this article . I’ve passed it on to some of my fellow CLL patients in Ireland . Kind regards . Emer

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