There is much to take in at that pivotal meeting when we're first told we have an incurable blood cancer. Memory retention isn't helped either by the impact of that unwelcome news. I remember being told to stop flossing my teeth (I was dangerously neutropenic - the condition that led to my diagnosis) and not to look up information on the internet. While I wasn't given a booklet about the condition, I subsequently obtained one from our local Leukaemia Foundation. (I think the clinic was temporarily out of stock at the time.)
I was also told that they could do something for me as I was young - which struck me as rather amusing, considering it was just before my 54th birthday. While I'm still (thankfully) watching and waiting, I would have preferred somewhat of an explanation as to why W&W was the best option for me.
Regarding reading about CLL on the internet, while I can appreciate the concern about getting misleading or even dangerous information, I would have much preferred being given a list of a few helpful sites... Mind, it took me a few months before I was ready to learn more about living with CLL and thankfully I found some excellent sites.
What information would you have appreciated being given at diagnosis that you've subsequently found really helpful in living with SLL/CLL?