Joint pain with CLL?

[Mwagner]

I have CLL and have been on W&W for five years. Suddenly a few weeks ago I developed severe joint pain in my hands, shoulders, elbows, and knees. Been taking Ibuprofen and that seems to help. Anyone else experience this? This was a sudden flare up andI never had on before. Am 71 and have been in reasonable health. Any input would be helpful.

[GMa27]

Not everything is CLL related. In the meantime try Claritin without D. Discuss with GP & hematologist about ur sudden flare up. Could be related since some people do experience that pain but it could be another condition. So best to have new labs drawn & see if something else is going on. 🙏💕

[Pin57]

Hi Mwagner - Sorry to hear of your joint pain, n GMa27 makes a good point that not necessarily everything is related to CLL.

However, with that said I just happen to get really bad hand joint pain n stiffness soon after my CLL diagnosis… maybe a coincidence?

Spoke with both my PCP & CLL docs about that and they agreed on trying a 500 mg supplement Turmeric pill daily and see if that helps .. n like magic it did. No more hand stiffness n now can grip easily my favorite poles, clubs, sticks, tools, etc.

That’s just one solution that worked for me. But suggest get checked-out with your doc(s) and see what they recommend for your case.

[Mwagner in reply to Pin57]

Thanks for your perspective! Both of you. What is weird is that I haven’t been experiencing any pain until a few weeks ago and was taking Turmeric prior to this! So it may well be unrelated to CLL. At first I couldn’t even pull the comforter over my shoulder without a lot of discomfort but, after a few days on ibuprofen I’m at about 85%. My PCP said ibuprofen is good for now to see if the flare ups stop and I’m scheduled for my hematologist in a couple weeks. Again, thanks for the feedback, it means a lot!

[Pin57 in reply to Mwagner]

Sorry to hear of your pain struggles n guess the ole Turmeric try wasn’t the magic pill for your case?

Well hoping that you find a longtime solution to your pain.

[Carmen11]

I to suffer from very stiff, sore joints, muscles, tendons ....I`ve had bone scans which show arthritis in many joints but the specialist did not seem to think that my pain and discomfort was relative to just the arthritis. I`ve read that joint and bone pain is not common with CLL but it is REAL and CAN HAPPEN . I believe mine is from CLL as have terrible flare ups for no apparent reason. I was diagnosed in 2018 aged 51 years. Still on W & W.

[Mwagner in reply to Carmen11]

Thanks Carmen