millefleur40 in Thyroid UK4 years ago
I have been on 50mcg of Levo and 13mcg of Tiromel for around six weeks now. Suffering from chronic constipation, then diarrhea, headaches ev...
Hi all have just been reading up on this new procedure where they put coils in you lungs which make them work better .
JosieNeg in British Lung Foundation5 years ago
Has anyone else herd of this. Sounds good if it works xxx
RECENTLY RESEARCHED ......EGCG
Susiecarer in CLL Support3 years ago
Being unable to sleep I did some research and came across a paper regarding the above.
It was written by a Karl W Oestreich in June 2010. The...
AVASTIN Didn’t do the job for me
Tameacob in My Ovacome2 years ago
HELLO EVERYONE ,
THIS IS THE 2ND TIME I AM POSTING IN THIS GROUP hope this post finds everyone good ,, I HAVE FINISHED MY 2nd line CHEMO In...
Intense ADT before prostatectomy.
pjoshea13 in Advanced Prostate Cancer8 months ago
New study below . Of academic interest to the group, but useful to others we might know, perhaps.
Phase II study with 75 men & 19 co-auth...
Sorafenib last chance saloon liver cancer
grahamrc in British Liver Trust2 years ago
I have cirrhosis and had liver cancer (a 5.5cm tumour). I had a resection nearly 3 years ago and everything was fine. A scan in jan showed 2...
Any NAC users out there ?
KERRINGTON in Parkinson's Movementa year agoPOPULAR
Is anyone using NAC, and if so, for how long, what brand, and have you noticed any improvement, problems etc. Thanks in advance !
Subcutaneous Lupron question
COG1 in Advanced Prostate Cancera year agoPOPULAR
My husband is participating in a clinical trial at Emory (Winship Cancer). As part of the protocol, he gets subcutaneous Lupron injections ...
I have CFS and fibromyalgia and I am on a trial of thyroxine for 3 months.
appalachian49 in Thyroid UK7 years agoPOPULAR
I have only been taking 25mcg for a month so far, so no noticeable benefit yet except my stools are more frequent, smoother and don't have a...
Dimentia and Xtandi
taxman in Advanced Prostate Cancer3 years ago
I really appreciate the kind advise you have all given butI now have a bigger problem which I attribute to the Xtandi and that is increasing...
|Why do we all have to undergo continuous \"Oncologists guess\" Toxic treatments without benefit?
Kerr2 in My Ovacome8 years ago
Ive read a lot about the treatment which women are offered in USA and wondered if anyone knows where this is available in UK? There they...
Actinium 225 combined with Zytiga
Ldb01 in Advanced Prostate Cancer6 months agoPOPULAR
After Docetaxel and Jevtana failed last year, hubby was given Zytiga with Prednisone in December 2018. After researching trials, we had the ...
Focused ultrasound in Parkinson's disease: A twofold path toward disease modification
iqbaliqbal in Parkinson's Movement3 months agoPOPULAR
Feedback on my new treatment options, what to do?
Davdow in CLL Support3 months ago
Hi everyone. So here goes: in short, after a long period of watch and wait, I have been told I need treatment again. Was always told I wou...
Frequency of CT scan during 'watch and wait'
Miee in CLL Support5 years ago
I am stage A without any lymph node enlargement, but WBC count are increasing rapidly (?) (elevating from 20 to 28 for 6 months)...
LU 177 - protocol in London
Ssiddy in Advanced Prostate Cancera year agoPOPULAR
Can anyone tell me how I should approach accessing LU 177 for my father? We are based in the UK and he is seen at the Royal Marsden. Spe...
My Story of Stage IV Kidney Cancer
mvrace4ever in Kidney Cancer Supporta year agoPOPULAR
Written originally on 02/11/2018
Hello All, I posted my story on Inspire before. I got invited to this Support group and I...
Estrogen for BRCA positive patients
snoraste in Advanced Prostate Cancera year agoPOPULAR
I'm seeing a lot of mixed recommendations on this topic. I was thinking of using estrogen patches for my occasional heating up and hot flash...
What To Do
Number1gland in Prostate Cancer Networka year ago
For those that don't know me I was diagnosed back in early July with Advanced Prostate Cancer. A biopsy found it in all core samples taken....
Cholesterol and statin relation to Prostate Cancer growth
GeorgeGlass in Advanced Prostate Cancer2 years agoPOPULAR
I have read what appear to me to be conflicting study results so I wanted to get other people's thoughts about this so I know whether to sta...
How do you cope with your health condition or disease?
AlexaHU in HealthUnlocked latest2 years agoPOPULAR
Today we have launched a new campaign to share what it's like to live with a health condition or manage your own wellbeing.
Over the coming ...
New to all this!
LAinNYC in CLL Support6 years ago
My husband was diagnosed at age 59 and has been \"watch and wait\" for 3 years...he was recently told his spleen is enlarged (no other lab r...
I am on a 3 week trial without medication!
Lavender-Blue in Thyroid UK3 years ago
I am om a three week trial without my levothyroxine (125mg). On no meds at all.
Already, my aching muscles and swollen painful, dead arms ...
NDT not working for me
Hidden in Thyroid UK3 years ago
Hey guys, I've been taking NDT but it doesn't really seem to be working for me. This is my 2nd trial on it, as I've already taken it before ...
I have been on 20mcg liothyronine 3 times a day following total thyroidectomy. Now following RAI the consultant wants me to convert
cjrsquared in Thyroid UK5 years ago
150mcg thyroxine. There is a 10 day swap over regime. Does this dose seem equivalent? I am prepared to give thyroxine a go as T3 doesn't mak...
Lucypuppy in Oesophageal Patients Association2 years ago
Things didn't go to plan. They couldn't get the tumour out. Best of it is its not spread anywhere, it's just too messy and mangled in there ...
Should You Be Avoiding FODMAPs?
BadHare in Healthy Eating2 years ago
Should You Be Avoiding FODMAPs?
Move Over Gluten-Free
Making dietary changes is increasingly becoming an important strategy for managing a var...
Olaparib - breaks in treatment?
WoodyB in My Ovacomea year ago
My wife Suzanne has been on the maximum dose of olaparib since October 2017 (finished 3rd line chemo in September) and so far so good - her ...
Friscok12 in My Ovacome2 years ago
After first line treatment cancer came back after 3 mouths put on letrozol now in hospital tablets dont seem tto be working they talking abo...
Ibrutinib and odd side effects
KevinCLLITP in CLL Support2 months ago
I have had CLL and ITP for almost 8 years now. My first year I was not treated but early in the second I had my first Rituxan, which was w...
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