Is there any one on here that has this disease that is my age
ARPKD: Is there any one on here that... - Children's Liver ...
ARPKD
Written by
DanaBoo
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3 Replies
•
My son is 13 and has the disease and still has full liver function. He is just suffering from Portal hypertension and takes blood pressure reducing drugs and vitamin supplements.
Otherwise he is in good health. If you want to know more please do not hesitate to contact us.
DanaBoo• in reply to
How are his kidneys?? Mine are ate up with cysts so bad that you cant see the tissue
• in reply toDanaBoo
Hi,
He has got cysts on his kidneys but at the moment nothing to get too worried about. His consultant just wants to make sure his blood pressure is below 115. Kidney function is fine at the moment.
