Is there any one on here that has this disease that is my age
ARPKD: Is there any one on here that... - Children's Liver ...
ARPKD
Written by
DanaBoo
To view profiles and participate in discussions please or .
3 Replies
•
My son is 13 and has the disease and still has full liver function. He is just suffering from Portal hypertension and takes blood pressure reducing drugs and vitamin supplements.
Otherwise he is in good health. If you want to know more please do not hesitate to contact us.
DanaBoo• in reply to
How are his kidneys?? Mine are ate up with cysts so bad that you cant see the tissue
• in reply toDanaBoo
Hi,
He has got cysts on his kidneys but at the moment nothing to get too worried about. His consultant just wants to make sure his blood pressure is below 115. Kidney function is fine at the moment.
Not what you're looking for?
You may also like...
Looking for positive outcome stories after Kasai procedure.
Hi, I'm simply looking for hope ... My son was diagnosed with BA at 51 days and got kasai at 53....
Biliary Artesia
Hello
My son is two month old , and he's diagnosed biliary Artesia , He's a premature baby and...
Diet
Hi, mi 6 months old son is about to start eating solids. He has biliary artresia and a kasai done...
Just confirmed that my son has Biliary artesia
Hello, my son is 11wks old today. He was admitted hospital due to prolonged jaundice with low body...
Warrens Journey
Warren was diagnosed with biliary atresia at 3 weeks old and at five weeks he had his Kasai he has...
biliary atresia
White stool after kasai
3 year old with alpha-1 endoscopy/banding?
PFIC - Type 1
After Kasai Procedure
