I just recently found out I have a genetic disease called ARPKD. I am scared and don't know anyone that has the same disease. I fell like no body knows what im going threw
Me!!: I just recently found out I have... - Children's Liver ...
Me!!
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DanaBoo
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Hi my son has arkpd since birth he is now 35 years old and has been sick all his life . he is now in endstage kidny failure and very sick because of his liver disease and portal vein thrombosis they cannot transplant
It is not a nice disease to live with I'm sorry to say but I wish you all the best x
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