Andrew is 10 years. He's only had a Kasai. He has portal hypertension, a big spleen which is still growing and recently we've been told he now has a large nodule on his liver which means attending hospital every 3 months. None of this stops my son from living the life he wants. He belongs to a football club and a running club. He has more entergy than anyone else in the house and takes his sport seriously. All his commitment over the last year has rewarded Andrew with reaching 7th place in the country over a 5km run. So what if his liver function tests are not normal. You would never believe it if you watched him run. He lives every day to the full and he's taught me to do the same.