Antibiotics and allergies

[angie26]

Hi I am having difficulty finding where to post my updates and unsure whether you lovely people are seeing them?

I have had trouble with my mobile phone in hospital and had to send out for a new charger, sorry about the delay.

I came home last night absolutely exhausted, it must be the times we are in but with 4 bed/ward moves, and staff and doctors from different areas, not respiratory, I ended up in a stroke ward (no beds in respiratory) and apart from a fleeting visit from a respiratory consultant who said she was going to check my sputum sample I have had no contact in 4 days with the respiratory team. I have been on Tazocin for 3 days and nebulised salbutamol, I had started a 5 day course of steroids prior to going in so I have now finished those. Someone from the medical team popped in to see me yesterday and said I looked too well to be there and I agreed, however no one has come near me in 4 days with a plan, she said as my inflammatary markers are coming down with the Tazocin, they were 60, they are sending me home with Cipro for 7 days! I asked if there was psdeuomonas in the sputum and if so was Cipro reccommended as there was an instance where my sample came back saying resistant to Cipro, she said she didn't know and she would go and find out!! I was asked how my breathing was and it seemed better although I had not ventured out of my ward. So long and short of it I am now home and still breathless, we shall see what happens after 7 days of Cipro!!!

I don't ask for much all I wanted ws to sit down with someone who knew why I was there and get some of the questions I need answered. I was on IV for 3 days and had to have my cannulla changed 3 times, I was woken up at 2.30 in the morning to answer basic questions i.e., what's my date of birth, do I live alone, do I have diabetes etc. There's more but you get the idea! Thank you all for your thoughts. X

[Mooka]

Hi angie26

I’m pleased to hear you have been allowed home but it’s not great that you still don’t feel well. Unfortunately it’s tiring being in hospital at the best of times as they are so noisy. Did you get discharge letter? That should show your latest results. If not a call to your GP or respiratory consultant may help. You have posted this in Bronchiectasis support and your original post was in BLF which maybe accounts for the lack of replies. Take care get plenty of rest and I hope you make a speedy recovery. X

[angie26 in reply to Mooka]

Thanks x

[jannie21 in reply to Mooka]

Hi Angie,

So sorry to hear of your problems. I know no two people are the same but when I have been in hospital for exacerbated bronchiectasis I have been on Tazocin for 2 weeks each time, Cipro did not have any effect, I too am colonised with pseudomonas.

I do hope you have better luck than me, if not please do keep asking for help. I know these are difficult times but we keep being told that the NHS is there for us. Thinking of you, Jannie x

[angie26 in reply to jannie21]

Jannie I’m so sorry to hear that, I don’t understand why I only had 3 days of tazocin and home with a week of ciprofloxacin, I was in hospital not that long ago with a week of tazocin, and unwell again within 2 weeks then nearly 3 weeks on merependem from which I had the most dreadful reaction! I’m not sure who to speak to, the consultants don’t seem to want to know and yet we are being told over and over they are there for you!! How do you know you have a bronchi ecstasies exacerbation as opposed to a psdueo infection or other, it’s so difficult, hope you keep well x

[jannie21 in reply to angie26]

I have never diagnosed myself, the doctor or hospital have always said it was always a bronchiectasis exacerbation. As far as getting in touch you could try phoning the consultants secretary tomorrow, good luck x

[NorthernGirl3]

I’m finding it very frustrating at the moment too. I understand that respiratory staff are under pressure because of Covid but that doesn’t help those of us who depend upon them. I had a letter at the beginning of October saying I was going to have a nebuliser antibiotic test as Ciprofoxacin was no longer being effective. Since then nothing in spite of ringing the consultant’s secretary. I’m having a phone consultation on Monday. I have a lot of questions!

[angie26 in reply to NorthernGirl3]

Yes I know there is a lot of pressure on the respiratory teams , I just hope things get better soon so that we all have the treatment we need, best of luck with the nebuliser x