Update Bronchiectasis

Hi everyone!

Well, I have had just about every test possible done. I live in the US and my healthcare is pretty good. (Very expensive though)

All of my blood work came back good.

My CT scan showed mucus plugging and inflammation. Bronchiectasis is a bit more progressed from tests in 2015.

I still have to do sputum test for a type of non TB bacterial infection that may need to be treated with an antibiotic for a year.

In the meantime, tired and trying to take one day at a time. It's so difficult to make plans with friends as I never know how I am going to feel on that day.

This causes a feeling a isolation and, also, it's a hard disease to explain.

Can be easier just being at home.

I was advised to walk 15 to 20 minutes a day at least and, to use acapella twice a day.

I'm trying.

One day at a time.

Breath well friends

Lili

[him24]

exactly ... exact same feeling i have everyday. Hard to explain to people, a feeling of isolation. Hard to stay among people for long duration. i can completely understand that.

[Hidden]

I have same problem. I am on second pacemaker in seven years. My acid reflux develops into bronchitis . Nights are especially difficult because of mucus and difficulty breathing. I end up sleeping in chair. This has been a very hot summer and the air outside makes it impossible to take my walks.

I see my ENT doctor tomorrow. I hope that she performs an endoscopy to determine if the disease has progressed since my hospitalization in May.

Very difficult to get a decent nights rest anymore. .

[Bella395]

Those mucous plugs need shifting but are really hard to cough up. Do you have treatment to assist you with this? Acapella twice a day doesn't sound very much.

[Hidden]

I am using it about 4 times a day now. I am coughing up a lot of mucus and am taking antibiotics. Chest pains and tired. Think I picked up something from the hot humid weather recently.

[Hidden]

I know how you feel. My own family does not understand. I never know how I will be from day to day. At times I am so tired and cannot get sleep. The attacks of breathing difficulties and mucus make it impossible to lie down. I force myself to keep moving and try to restore my condition as to get a good night rest. It is very frustrating,but I just try to take one day at a time. I am glad to know others are going through the same situation.

[Keep-positive]

Hi LilliI completely understand how you feel , it's relentless.

I feel I'm just existing to do my nebulising and oral meds .

No energy for a social life .

Take care 💗