Burkholderia Gladioli infection

[Yess1e]

I have this infection and I feel I've had it for a long time and that it increases and then I become unwell. I went into hospital at Christmas and had IV Antibiotics (Tazocin) for 10 days.

It took a long time to see any change, typically the right Antibiotics make me feel a lot better by 3 days. By the last day I told them I was feeling worse again and coughing up stuff. They discharged me saying I was fine. I progressively got worse and very unwell. (Fever, coughing up blood, malaise, fatigue, breathless, night sweats, no appetite...)

The hospital have said there's nothing they can do, they also said they had no culture to go on. The GP cultured Burkholderia G, hospital say it's not a bacteria of concern. When I look this bacteria up it says it very much is.

I started Co-Amoxiclav as I was really worried at how ill I was. 3 weeks of it and the mucus reduced, my appetite came back and I couldn't stop eating (first time in years), gained weight, no fevers, slowly recovering though I can tell it's still there lurking not cleared. The hospital are still saying they're not prepared to do anythign unless I culture something else. that Burk' G is not a concern.

hospital said reduce Co-Amoxiclav to 2x per day (not 3) and the mucus and coughing, lack of appetite is back!

I tried a private consultant who I could tell, didn't want to step on toes, so he just took my money and said bye.

I've had cancer multiple times, I know what feeling unwell is like and my body. I feel abandoned. This is not living I can't do anything unless I keep taking Co-amoxiclav.

**Any advice, help, thoughts, guidance, greatly appreciated as I'm absolutely stuck and desperate**.

Thank you so much in advance. X

[Naturalway]

Have you tried the complaints route. If you don't think you've been cared for properly. If you feeling they havent done their due dilligance.Asked them again to explain in detail why they say its if no importance?

I didn't realise there were such destructive bacteria people could catch. And sepsis is so common !

I've had Psudonomas, and I hear you know what you're going through.

[Naturalway]

Also : Did they send you for a scan a lung health check with the NHS if you are in the UK . What does your primary doctor say. Have you looked at LUNG HEATHMATTERS Facebook group. 🙏

[Patk1]

Ru feeling any better Yess1e x