URSO QUESTION: If you are fortunate... - British Liver Trust

British Liver Trust

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URSO QUESTION

Gaspereaux profile image
3 Replies

If you are fortunate enough to be an URSO RESPONDER, and all liver enzyme tests have returned to normal, does that mean URSO is working to HALT the progression of PBC or has it just slowed down the progression? In other words, can your PBC worsen even though your LFT’s indicate there is no more damage being done?

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Gaspereaux
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lizzybeebee2003 profile image
lizzybeebee2003

Hi, I'm in the same position. As far as I'm aware it is possible that the urso will stop the progression of pbc. There is no way of predicting this though, but it should slow the progression even if it doesn't completely halt it. I'm very much hoping this for myself!

Gaspereaux profile image
Gaspereaux in reply tolizzybeebee2003

I am not in that position yet, but after six months of Urso, and only the last two on the optimal dose for my weight, my AST and ALT have returned to normal and my ALP went from 385 to 175, so i am hopeful…

SpiritLift76 profile image
SpiritLift76 in reply tolizzybeebee2003

I have been on Ursodiol for four years and at first it brought my levels completely down to normal and I thought “yes! This is great news!” Last week my enzymes were over 600 and I realized the disease was still progressing and the meds were only masking the disease… there is no cure for PBC… only medication to slow the progression

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