Well, nearly 6 weeks post transplant, things all stable and improving slowly.....I knew it was too good to be true. And.......My 15yr old son has tested positive for Covid this am.Same old thing weve struggled with all along this journey. We can wrap husband in cotton wool, sheild, stay home, cancel social life etc but how do you keep your kids away from school? Theyve already suffered not being able to go fun places or have friends over, apart from the legal and academic duty.
I just wish folks had a) testing kits still readily available and b) sense to test and stay home when showing signs of covid.
Last time my son caught it, my husband was positive within a day. This time, on imnusupressants i cant possibly see how he can miss it. I feel sick at the thought of what implications it might have. His scar hasnt even properly healed never mind everything else.
I will be ringing his team at 9am to get advice.
Ewife
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Ewife
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Good morning ewife. Well I'm speechless .. so sorry to hear about your son catching covid,
Maybe shield hubby away in the bedroom 🤔 until the covid infectious period is over , you'll obviously need to keep your son off school, it's one of those things ewife ,sadly it's no longer a issue aa it once was , you've done the right thing in calling his liver team .
Please try not to worry .
I had to ring my liver nurses yesterday, left a message as I'm not too well myself.
I pray hubby stays covid free to continue his recovery
Thank you for your kind words Ewife, im so so ,I'll be glad once I've spoken to my liver nurse really .I will keep everything crossed for you and the family that no one else becomes infected
While your son is positive I would mask and keep the house well ventilated. Invest in a good quality air filter if you can afford it. And yes, keep your hubby well away. Covid is airborne, so while it is important to keep surfaces and touch points clean if someone has been coughing and sneezing , the main focus should be on keeping the air as clean as possible. Hope your hubby manages to avoid infection. Sending best wishes 🥰
I've had covid twice, I'm post transplant, both times I was fine. Second time I had it my husband never caught it, I staid in my bedroom and when I did leave I wore a mask and carried a antibacterial wipe so I never touched a surface. My husband moved into another room. Hopefully he won't catch it, if he does phone 111 and they should arrange for antiviral treatment, I had medication both times.Don't panic about it, I know you want to wrap him in cotton wool but you can live a normal a normal after transplant, that's why doctors do trasplants to enable us to live not hide away from the world, that's what my consultant says.
Thank you for your kind words! Im trying my best to contain it - with similar methods, masks, wipes and dettol room spray. I just feel so torn between an ill 15yr old and my husband who still can't manage basics by himself. Im still testing negative this am but have a sore throat - dont know if thats because im exhausted or going down with something. All i can think to do is clean, clean clean. I rang school and they said my son can go in if he feels up to it?? Why are the rules different to a stomach bug? No wonder he caught it if thats the advice 🤷♀️ we didnt stand a chance.
Its a comfort to know that youve been fine though, thank you. I guess thats whats making me panic, last time he had covid his bilirubin levels never recovered back to pre-covid. But i need to have faith in his lovely new Liver.
We tend to think that because COVID isn't in the news that it's gone away. Thank you for the reminder that we still need to be wary. Hopefully you and your husband can manage to avoid catching it. I can imagine how worried you must be x
Hi Ewife, I get so frustrated that most of society behaves as if Covid is over. It hasn’t and it’s people like your husband that are expected to shut themselves away. I’m so sorry this has happened.
To echo Michegu, we’re using N95 masks, keeping windows open and using an air filter when the kids are in the house. My daughter also uses a nasal spray and eye drops if she’s been on public transport. There are specialist Covid ones but I think the First defence spray might do at a pinch. I hope your husband can get the antivirals.
Fingers crossed that you don’t go down with it. Big hug
We both tested positive for covid this morning. So far, he's not really any worse than me with it. The main difficulty has been me not being well enough to run round as usual - but we're managing so far.Hospital don't reckon he needs anti virals. Im just making sure he has stacks of fluids, as kidney function issues arent resolved, and the hot weather will be adding to the strain as well as covid. Hopefully we can ride this one out.....
Update Day 7 since testing positive for Covid:All of us are clear now but husband is struggling to move Covid on. He doesnt seem to have secondary infection, no sign of fever or anything but its just hanging around. Its starting to impact his recovery now, not being well enough for walks and mentally, feeling like hes stuck and not progressing.
I wish id been warned there was a bad outbreak of covid.......take care everyone, wear masks if you can and avoid crowded spaces as much as poss.
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Covid Positive now day 60
Varices Bleed
After 15 + months on the transplant list, I've had my transplant!
Recently diagnosed - oesophageal varices and Liver cirrhosis 
What a day
