I’ve had an ultrasound and fibroscan and the results were 12.9 and cap 391. My consultant didn’t let me talk and was quite condescending and patronising. I’ve carried too much weight my entire life, dieting after diet, I even had 6 weeks on a starvation diet in hospital when I was 16. I came from a poor family so meat and 2 veg was a staple, no puddings except on a Sunday. I’ve had no real help since despite exercising my brains out during my 20s, 30, 40s and 50s. Joint problems limit me now and continued plantars faciilitis hampers too.
I left her office feeling depressed and frightened. Not sure I have a question, I just needed to get this off my chest. Thank you.
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TheLWord1
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Hi, aside from patronising face, lose weight. Like I’ve never tried that one, she was going to tell my doctor to get on with giving me some decent help. I’m also pre diabetic and belong to a group, the advice there contradicts the liver advice, ie full fat, avocados etc. however the dr said avocados have at least 6-800 calories, WRONG. What about the healthy fats, do I go low fat which ups the sugars? I’m doing my best with trying to lose weight and do stretching exercises and skipping when the Plantars allows.
It’s NAFL so need to shift the weight, trying not to eat any processed food, not a sugar fan overall, but know it’s everywhere, so trying my best, going back to 0% Greek yoghurt with berries. Use healthy fats oils and trying to stay away from too much in the way of carbs. It’s not easy is it.
so I to have NAFL with High lipids and overweight, I’ve been working on it for a year and doing well, it took me 1-2 months to start seeing some good results and I just kept it going trying to make the best choices of food I can. You can do it it’s not easy but you can.
Hello!! That’s a workable KPA score… just needs to get your ‘skates’ on ☺️. Intermittent Fasting is amazing for everything, I would highly recommend doing some research if your own in that area. Best of luck!!
Try not to worry. I have had NAFLD over 20 years. I had fibro scan in 2020 and another this year. Both the numbers you mention had come down quite a lot on last fibroscan. All by losing just over a stone . Was told by a well respected liver consultant in Birmingham that losing 10% of body weight helps big time
Hi there. I understand how you are feeling. Worried and it's not good care to just let you go with being given a chance to ask questions or be given an idea of what the scores are. I had a fibroscan last week. I had never heard of this before and had to ask twice to get this done. I asked questions about mine and got the nurse to write down and explain my scores. You can clearly look these up online. My KPa score was 16 - this measures liver stiffness so means I am between F3_F4 - severe scarring & fibrosis. As in cihrossis which I know. Yours is 12.9 so I would check it on-line. Much better than mine. CAP is the fat level in the liver. Top is 400. Mine is 316. I was horrified. I'm 5 ft 3 and weigh 9 stone 12. So I'm on a diet - have lost no weight since Monday either. I can't do too much exercise as I fractured my back and right femur 2 years ago so I'm still using a crutch. I intend to go swimming again which I did last year. I have bought a few books on diets for fatty liver and The Mediterranean Cookbook. On sweeteners in my coffee now. Cut out cakes, biccies and red meat. Only eating chicken, brown pasta, salads and fruit. Apparently apple cider vinegar before meals and drinking water is an appetite suppressant so I've ordered some from Amazon - gumming as in sweets. Essentially I'm putting my liver on a big diet with as much fat and sugar taken out. Swimming I can do which is the only time I'm pain free really. I have osteoporosis and all sorts of bone issues too. But I'm going to try really hard at this. You should ring them up and get an explanation about your scores. There was no need to treat you like this and bundle you out as fast as possible. So wrong. Its your health and you are ENTITLED to get some answers from these professionals. So I understand why you posted on here. I'm furious that they NEVER offered me a fibroscan. My gp says I diet have cihrossis. The hospital hepatologist says I do. All purely based on ultrasounds. At least I now know that I do have compensated cihrossis from the fiboscan results. Mine is irreversible now but I can at least get the fat out of my liver as much as I can so it works better..I gave up drinking two years ago. Mine was caused by drinking. A lot of people's fatty livers are NOT caused by drinking. My gallbladder is filled with gallstones too- not having it removed as its too dangerous. Hopefully it will work better with what I am trying to do. It is not going to be speedy, I know that but all I can do is try.
I don't think I have really helped at all. Good luck with everything and let me know how it all goes. Best wishes Jo x
The kpa score for cirrhosis varies according to the score. Whilst it is higher for NAFLD it is much lower for ARLD. If NAFLD is the cause then that CAP and kpa could come down with weight loss.
Hi Jo, you have actually helped. I feel your pain with all the things not working properly. I had a fall 3 years ago and seriously broke my four bottom ribs, took 16 weeks to heal, I’m lucky I have none of the corresponding pain in my side and if I had not been given the wrong meds for overactive bladder which elevated my liver enzymes, I would’ve been none the wiser until it was too late, complaining to my GP about colossal fatigue led nowhere, so I guess in a way the wrong meds has been a good thing. Struggle as I might, I have to get some weight gone. I will fight the good fight, don’t lose hope Jo and neither will I. All the best Jan x
Hi Jan. So lovely to hear back from you. The painkiller I was put on - pregabalin caused me to put on 2 stone and I'm now pre-diabetic. My painkillers have now been swapped. There is no diabetes in my family. I think it was the painkillers. Keep in touch if you can. Like you, I am hopeful too. My liver is my fault. I don't know what KPa 16 actually means but the nurse said I'm between F3 and F4. As in compensated cihrossis. Too late to reverse. But if I can decrease the fat, my liver should work better hopefully.
i have plantar fascitis. i bought some pavers shoes and some insoles specially designed to help with pl.fasc .gone within ten days.i also got a boot from the hospital over the phone ask about getting one.im on the replacement meals newcastle diet losing a stone and 4lbs in about 6 weeks.no mad exercicing necessary in fact recommende not to because it exacerbates hunger.
Hi All thank you all so much for help and encouragement, it means a lot. I have an app called Lose It which monitors all my calories. Quite a big thing removing fat and sugars, particularly as the med diet has lots of healthy fats. It’s a minefield really, eat this, no don’t eat this, drink this, no don’t drink this. Whatever I have to do for Liver contradicts with the type 2 pre diabetes. Going to do everything I have to do, but boy am I going to tell my GP a few things if I ever see her! Good luck to all of you in this lifetime quest xx
I will look at that Lose it App too. Hopefully I can reverse the pre-diabetic thing too. I believe avocado's are pretty good for you too. Really tasty with just Worcester sauce.
There are many posts on this forum in which people have shared stories of reversal of their NAFLD disease. Plants should be the center of your eating. Plenty of dark, leafy greens, fruits with fiber such as apples. Many people also benefit from omega-3 fatty acids, which studies have shown help to remove fat from your liver (strange, I know!). Here is one from the EU Journal of Hepatology:
The only thing doctors differ on is how much you should take. The EU article recommends a dose of at least 830 mg. Commenters noted that the minimum should be 1000 mg per day since they note that people with NAFLD are more likely to die of cardiovascular disease than liver disease, and omega-3 helps cardiovascular disease improve greatly. So, definitely take the omega-3 , unless with your doctor objects.
Today, you have heard good advice on your path forward. The takeaway, that you should never forget, is that the ultimate power to heal lies within your body.
The liver is a remarkable organ. It alone has the ability to regenerate itself. In fact, doctors have surgically removed up to 90% of a person's liver and seen it regrow to a functioning liver! Doctors have also reported many cases of fibrosis and even cirrhosis reversal. In all these cases, irrespective of what caused the liver disease (alcohol, hepatitis virus, autoimmune disease, fatty liver), the turning point was the same --remove the cause of the injury first.
So, if alcohol caused the injury, just stopping drinking allowed the liver to begin to reverse the damage. If autoimmune disease caused the liver disease, then controlling the autoimmune disease allowed the liver to start to regenerate. In your case, NAFLD, diet and lifestyle contributed and perhaps caused the harm to your liver. So, you have to adopt a new lifestyle that is friendly to your liver. Then your liver will start to heal. We don't know how much it will heal. But it will heal.
Thank you so much, the information is really helpful, I’m allergic to tree fruit and some nuts so I eat what I can and also eat avocado (in small amounts) to get some healthy fats. I also take a Cardiovascular/Liver supplement to help. Hopefully along with my app I will lose some weight.
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