Fibroscan grey area: Can anybody explain... - British Liver Trust

British Liver Trust

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Fibroscan grey area

32 Replies

Can anybody explain what people mean when they say a score of 6.2, for instance like mine was, is a grey area?

32 Replies

I have no idea because between 2 and 7 is normal assuming all other tests and scans are normal. 75 is the highest.

MW923 profile image
MW923 in reply to

What are we talking about here score on what?

Jaygee87 profile image
Jaygee87

I would not call 6.2 a grey area. Id call it normal.

MW923 profile image
MW923 in reply toJaygee87

Yes what type of test are we talking about here ?

AyrshireK profile image
AyrshireK in reply toMW923

They are discussing a fibroscan - it's similar to ultrasound but it takes (usually 10) readings across the liver. They reveal a kPa score which reflects the amount of fibrous tissue in the liver i.e. how dense the liver is and a CAP score which shows how much fatty change there is in the liver.When they take the average of the ten scores for kPa and CAP they can make a report as to what grade/stage of fibrosity is present on the metavir scale (F0-F4) and how much fat/steatosis is present. Giving a Steatosis grade of S0-S3.

Katie

MW923 profile image
MW923 in reply toAyrshireK

Thank you for explaining that my daughter wants me to have that test I had the blood test and my score was at F0 and he says yes but that's blood but I don't think you have fibrosis my fat on my liver was a stage 3 on the blood test and my Nash was mild I am terrified to actually get this fiber scan done due to the fact on all the readings that I read literature I should say it says that that test can be an accurate but I thank you for taking the time to explain that in full detail it was wonderful how you did that and explained it Still terrified but it seems like it's something I'm gonna have to do I just fear that the test is not accurate and it'll have me more worried Now mind you those blood tests I had were in January I have lost 40 something pounds since then and been eating diligently and walking

AyrshireK profile image
AyrshireK

Here's the fibroscan score chart showing cut off values for a number of conditions - 6.2 is (at very worst just into F1).

Fibroscan score chart.
in reply toAyrshireK

Thank you Katy. X

Done786 profile image
Done786

what is best test for liver

AyrshireK profile image
AyrshireK in reply toDone786

There is no one test that determine liver issues. Often diagnosis is based on a combination of tests often starting with bloods then going up to scans and even liver biopsy if cause of any liver issue is unsure.

Done786 profile image
Done786 in reply toAyrshireK

i had ct scan i been having symptoms for 2 years

MW923 profile image
MW923 in reply toDone786

What did your CT scan show as far as your liver and what symptoms have you had?

WorriedUK01 profile image
WorriedUK01

Mine was 6.5 and the consultant said normal and nothing to worry about. He said he doesn’t normally get concerned unless it’s approaching 9.0

He said at 6.5 there will be no significant fibrosis or damage.

Needless to say the whole experience scared the heck out i I f me and I’ve not drank alcohol for over 6 months now and don’t intend to again. In fact I feel so good not drinking it I wonder why I did in the past!

in reply toWorriedUK01

Can’t say I feel the same, 8 months for me but I have terrible brain fog today.

MW923 profile image
MW923 in reply toWorriedUK01

That is wonderful I'm in the same boat as you I found out in January And I stopped drinking as well my doctor says I can drink which is unbelievable and I choose and no better to not drink I read so much literature everything says do not drink I mean come on this is affecting our liver why would we damage it more by drinking. So. So my question to you is were you diagnosed with Nash and you were just Tech checking for fibrosis

briccolone profile image
briccolone

Quite a few years back I had a fibroscan at one of the British Liver trust roadshows and mine was 7.2. I had a chat with one of the consultants and she didn't look alarmed and said have a chat with your GP, which I did. He'd never heard of a fibroscan ! I'm going back a few years now. That was after 20 years of drinking. It's almost certainly worse now I suspect. In short, Worrysome I wouldn't worry about your your score of 6.2 . Keep it at that level is my advice 😀

in reply tobriccolone

Hope you don’t mind me asking but on another post you said you have mild symptoms, what are they? I don’t know whether mine can be classed as mild or not.

briccolone profile image
briccolone in reply to

yes not at all-mainly digestive-I decided to stop drinking in October 2019(not doctors orders) -started getting brain fog about 3 months later -digestive system all over the place -mild brain fog that would come and go. Various bloods taken-high cholesterol and GGT-all else ok. Then the pandemic kicked in and all and my woes were as nothing as compared to everything else so decided just to carry on . I rarely drink now-and most things seem ok ...sleep- it's a bit hit & miss-digestive system mostly ok -tendency to pale stools on occasion. My gut feeling (scuse the pun) is enlarged liver-I'll get it checked out in the Autumn.

MW923 profile image
MW923 in reply tobriccolone

If you mind me asking did you do you have NASH or just fatty liver?

briccolone profile image
briccolone in reply toMW923

Hi MW never been diagnosed with NASH...doesn't men to say I don't have it! The only thing I've definitely been diagnosed with is fatty liver (via ultrasound). Since I've reduced alcohol intake -don't have much in the way of symptoms. Haven't seen the GP for 18 months due to lockdown etc. I'm reasonably relaxed at present-loads more people with much much more pressing issues for the nhs to deal with. Good luck with your condition-good diet looks to be the best treatment.

MW923 profile image
MW923 in reply tobriccolone

Yes thank you and excise. Good luck to you as well.

I have symptoms that are not going away and I have lived healthily for 8 months now totally alcohol free, I just can’t help but doubt the tests.

in reply to

Are you still constipated? Might be worth having an exploratory of your bowel. You may have diverticulitis which brings with it bouts of brain fog which you also say you have?

MW923 profile image
MW923 in reply to

I feel great as well, and yes stopped drinking, I was not heavy drinker, but I enjoyed my Friday nights with husband at our favorite bar. I could care less now, I'm Focused on living and being healthy and fighting for my life due to NASH

Symptoms not improving at all. Thanks for reply. I’m due to have colonoscopy.

Thanks for replying. I would gladly get on with my life but my vision is weird. It’s like brain fog. I smell strange, have funny taste in my mouth, my hair is changing texture. On the other hand I’m not really lacking in energy, I don’t know about tests because people on here sometimes have had negative results with all the tests that I have had but still had cirrhosis. One telltale sign to me is that my cholesterol has shot up from 5.? to 7.9 in 6 months. I have been eating salads etc and not drinking any alcohol, it should have come down not up.

briccolone profile image
briccolone in reply to

how about the good cholesterol-that's the important bit-it's the ration ldl to hdl. When I stopped drinking my good cholesterol came up sharply-mine's about 6.7 now

MW923 profile image
MW923 in reply to

Are you eatting low carb and low fat?

They didn’t say good cholesterol. It’s all very strange. Thanks for replying.

SevereFattyLiver profile image
SevereFattyLiver

Mine was 5.7 and my hepatologist told me that was F1.

Julie8 profile image
Julie8

Maybe what they mean is, it’s time to change the end outcome that could happen if there is no lifestyle change

MW923 profile image
MW923 in reply toJulie8

Yes its all scary for us all. Life style is the only way and praying at the same time.

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