Fibroscan: Former drinker with symptoms... - British Liver Trust

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Fibroscan

pizza07110711 profile image
10 Replies

Former drinker with symptoms. Had mild elevated enzymes which have returned to normal according to my lab. I had a fibroscan along with CT scan and ultrasound. Fibroscan was 5.4 and CAP 180.

Has anyone had a normal fibroscan only to later find out it was a false negative and they in fact had cirrhosis? Thank you.

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pizza07110711 profile image
pizza07110711
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10 Replies
MINTVCX profile image
MINTVCX

"Former drinker" how many years (daily?) if I can ask?Normal LTF and F0/F1 fobroscan result (lowest possible) also normal ultrasound and CT indicate that cirrhosis is highly unlikely in my opinion. Of courses check with your doctor.

pizza07110711 profile image
pizza07110711 in reply toMINTVCX

Too long -probably 25 years of 3-6 drinks with some breaks spread throughout.

Roy1955 profile image
Roy1955

Back to using this name again Mark?

pizza07110711 profile image
pizza07110711 in reply toRoy1955

I am not "Mark"

Anon99999 profile image
Anon99999

you don’t get false negatives with Fibroscan, the chance of you having cirrhosis is pretty much 0

MINTVCX profile image
MINTVCX in reply toAnon99999

"you don’t get false negatives with Fibroscan" not true. It is usually not so common like false positive but still can happen as in any other test.

pizza07110711 profile image
pizza07110711

I also had ammonia, INR, PT, and APTT checked which were normal but have read that all these labs can be normal even with cirrhosis.

AyrshireK profile image
AyrshireK in reply topizza07110711

Whilst some bloods can be normal in well compensated cirrhosis you can't have symptomatic cirrhosis and normal bloods since symptoms invariably arise due to a derangement of bloods.

pizza07110711 profile image
pizza07110711

I have difficulty staying asleep waking up multiple times per night, internal tremors (feels like body is vibrating), and muscle weakness. My feet and legs hurt kinda like a soreness feeling even when I haven't done anything. I am just convinced it is my liver due to the past history of alcohol use.

isi123 profile image
isi123

From my personal experience:

-FibroScan is a useful tool for monitoring various liver diseases.

-It is quite accurate in distinguishing between early and advanced stages of fibrosis, but less so between early and intermediate stages.

-You can have normal blood tests and still have a liver disease.

-If you have abused your liver through alcohol consumption, genetic disease, or viruses, it is challenging to expect your liver to be as healthy as that of someone in a normal state.

In my case, I have hemochromatosis and am prone to fatty liver. When I was diagnosed, my liver function tests (LFT) were in the 100s (years), and my liver had five times more iron than a normal person, with nearly 15 times more ferritin in the blood.

In my latest check-up (every 6 months):

AST 21

ALT 23

GGT 28

Platelets 229

FibroScan 4.3 kPa probe M (before last 5.8 kPa probe XL)

CAP 209

Everything seems completely normal.

However, if I take any medication, such as antihypertensives or statins, my liver panel starts to become imbalanced 100s, and I cannot tolerate it, whereas a healthy liver would not have any issues. Therefore, if you have put your liver under stress for many years, you need to seek a proper diagnosis and be prepared to treat it with great care for the rest of your life.

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